ArticleJournal of AAPOS : the official publication of the American Association for Pediatric Ophthalmology and Strabismus2017
Bilateral childhood visual impairment: child and parent concerns.
Article in Journal of AAPOS : the official publication of the American Association for Pediatric Ophthalmology and Strabismus, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
8 citing papers in PubMed, 17 citations in OpenAlex.
- Caregiver Socio-Economic Factors and Perceived Effectiveness of Care Delivery in Relation to US Adolescent Vision Care: A Retrospective Analysis from a National Database.Pediatric reports · 2025Article
- Bilateral Iridochorioretinal Coloboma Managed with Low Vision Rehabilitation: A Case Report.JNMA; journal of the Nepal Medical Association · 2023Article
- The State of Patient-Reported Outcome Measures for Pediatric Patients with Inherited Retinal Disease.Ophthalmology and therapy · 2022Review
- Bridging the Gap: Parent and Child Perspectives of Living With Cerebral Visual Impairments.Frontiers in human neuroscience · 2021Article
- Association of Strabismus With Functional Vision and Eye-Related Quality of Life in Children.JAMA ophthalmology · 2020Article
- Development of Pediatric Eye Questionnaires for Children With Eye Conditions.American journal of ophthalmology · 2019Article
- Parenting and Future Anxiety: The Impact of Having a Child with Developmental Disabilities.International journal of environmental research and public health · 2019Article
- Patient-derived questionnaire items for patient-reported outcome measures in pediatric eye conditions.Journal of AAPOS : the official publication of the American Association for Pediatric Ophthalmology and Strabismus · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors at 3 institutions in 1 country.
Funding
Abstract
purposeTo identify specific health-related quality of life and visual function concerns affecting children with bilateral visual impairment as expressed by children or one of their parents (proxy) and concerns affecting the parents themselves.
methodsA total of 37 children <16 years of age with visual impairment (visual acuity worse than 20/70 in the better eye) and one parent for each child were prospectively enrolled. Semistructured individual interviews were performed with children 5-15 years of age (n = 16) and with one parent for each child (ages 0-15 years, N = 37). Interview transcripts were analyzed using NVivo software. Categories of concern were identified from both child and parent interviews, from which broad themes were identified. The frequencies of the themes and specific categories of concerns were calculated.
resultsRegarding the child's experience, categories of concern were grouped into 6 themes: visual function (expressed by 13 of 16 children [81%] and 33 of 37 parents [89%]), treatment (63% and 54%), emotions (50% and 68%), social (50% and 70%), physical discomfort (50% and 22%), and worry (38% and 8%). Concerns expressed regarding the parents' own experience were grouped into 5 themes: worry (100%), compensate-adjust for condition (89%), treatment (84%), emotions (81%), and affects family (46%).
conclusionsIndividual interviews identified a wide spectrum of concerns in children with visual impairment and their parents, affecting functional, emotional, social and physical domains. Specific concerns will be used to develop patient-derived questionnaires for quantifying the effects of visual impairment on children and parents in everyday life.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.