Evidence map›Paper›PMID 28524073›Full record

ArticleInternational journal of molecular sciences2017

Parents' Attitudes toward Clinical Genetic Testing for Autism Spectrum Disorder-Data from a Norwegian Sample.

Jarle Johannessen, Terje Nærland, Sigrun Hope, Tonje Torske, Anne Lise Høyland, Jana Strohmaier, Arvid Heiberg, Marcella Rietschel, Srdjan Djurovic, Ole A Andreassen

Abstract read
In one paragraph

Article in International journal of molecular sciences, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers.

0numbers the graph read from it
0cells of the map it votes in
22citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

22 citing papers in PubMed.

  1. Review
  2. Article
  3. Article
  4. Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. Article
  10. Article
  11. Article
  12. Article
  13. Article
  14. Article
  15. Article
  16. Review
  17. Article
  18. Article
  19. AI Data-Driven Personalisation and Disability Inclusion.Frontiers in artificial intelligence · 2020
    Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Jarle JohannessenNORMENT, KG Jebsen Centre for Psychosis Research, University of Oslo, Oslo 0424, Norway. jarle@autismeforeningen.no.
Terje NærlandNORMENT, KG Jebsen Centre for Psychosis Research, University of Oslo, Oslo 0424, Norway. ternae@ous-hf.no.
Sigrun HopeNORMENT, KG Jebsen Centre for Psychosis Research, University of Oslo, Oslo 0424, Norway. sighop@ous-hf.no.
Tonje TorskeDivision of Mental Health and Addiction, Vestre Viken Hospital Trust, Drammen 3004, Norway. tonje.torske@vestreviken.no.
Anne Lise HøylandRegional Centre for Child and Youth Mental Health and Child Welfare, Department of Mental Health, Faculty of Medicine and Health Sciences, Norwegian University of Science and Technology, Trondheim 7491, Norway. anne.lise.hoyland@ntnu.no.
Jana StrohmaierDepartment of Genetic Epidemiology in Psychiatry, Central Institute of Mental Health, Medical Faculty Mannheim, University of Heidelberg, Mannheim 68159, Germany. Jana.Strohmaier@zi-mannheim.de.
Arvid HeibergDepartment of Medical Genetics, Oslo University Hospital, Oslo 0424, Norway. arvhei@ous-hf.no.
Marcella RietschelDepartment of Genetic Epidemiology in Psychiatry, Central Institute of Mental Health, Medical Faculty Mannheim, University of Heidelberg, Mannheim 68159, Germany. Marcella.Rietschel@zi-mannheim.de.
Srdjan DjurovicNORMENT, KG Jebsen Centre for Psychosis Research, University of Oslo, Oslo 0424, Norway. srdjan.djurovic@medisin.uio.no.
Ole A AndreassenNORMENT, KG Jebsen Centre for Psychosis Research, University of Oslo, Oslo 0424, Norway. ole.andreassen@medisin.uio.no.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Clinical genetic testing (CGT) of children with autism spectrum disorder (ASD) may have positive and negative effects. Knowledge about parents' attitudes is needed to ensure good involvement of caregivers, which is crucial for accurate diagnosis and effective clinical management. This study aimed to assess parents' attitudes toward CGT for ASD. Parent members of the Norwegian Autism Society were given a previously untested questionnaire and 1455 answered. Linear regression analyses were conducted to evaluate contribution of parent and child characteristics to attitude statements. Provided it could contribute to a casual explanation of their child's ASD, 76% would undergo CGT. If it would improve the possibilities for early interventions, 74% were positive to CGT. Between 49-67% agreed that CGT could have a negative impact on health insurance, increase their concern for the child's future and cause family conflicts. Parents against CGT (9%) were less optimistic regarding positive effects, but not more concerned with negative impacts. The severity of the children's ASD diagnosis had a weak positive association with parent's positive attitudes to CGT (

Indexed as

AttitudeGenetic TestingAutism Spectrum DisorderAutistic DisorderFemaleHumansLinear ModelsMaleNorwayParentsSurveys and QuestionnairesASDAsperger syndromeattitudesautismclinical genetic testingethicsgenetic counsellingparents

Identifiers

PMID28524073
PMCPMC5454987

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.