ArticleCSCW : proceedings of the Conference on Computer-Supported Cooperative Work. Conference on Computer-Supported Cooperative Work2016
Boundary Negotiating Artifacts in Personal Informatics: Patient-Provider Collaboration with Patient-Generated Data.
Article in CSCW : proceedings of the Conference on Computer-Supported Cooperative Work. Conference on Computer-Supported Cooperative Work, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 65 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
65 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- How Self-tracking and the Quantified Self Promote Health and Well-being: Systematic Review.Journal of medical Internet research · 2021Pooled it
- How patient-generated health data and patient-reported outcomes affect patient-clinician relationships: A systematic review.Health informatics journal · 2020Pooled it
- Converging and diverging needs between patients and providers who are collecting and using patient-generated health data: an integrative review.Journal of the American Medical Informatics Association : JAMIA · 2018Pooled it
- Pooled it
- Understanding self-monitoring to inform a mobile intervention for binge eating and weight management: A proof-of-concept randomized trial.The International journal of eating disorders · 2022Trial
- Barriers and Enablers to Integrating Patient-Generated Health Data in Shared Decision-Making From Health Care Professional and Patient Perspectives: Scoping Review.JMIR mHealth and uHealth · 2026Article
- Exploring Collaboration Breakdowns Between Provider Teams and Patients in Post-Surgery Care.Proceedings of the SIGCHI conference on human factors in computing systems. CHI Conference · 2026Article
- Article
- Veteran Preferences and Willingness to Share Patient-Generated Health Data.Journal of general internal medicine · 2025Article
- Patient-Generated Collections for Organizing Electronic Health Record Data to Elevate Personal Meaning, Improve Actionability, and Support Patient-Health Care Provider Communication: Think-Aloud Evaluation Study.JMIR human factors · 2025Article
- Patient-Generated Data as Interventions in Doctor-Patient Relationships? Negotiating (Un)Invited Participation in Medical Consultations.Sociology of health & illness · 2025Article
- Beyond Detection: Towards Actionable Sensing Research in Clinical Mental Healthcare.Proceedings of the ACM on interactive, mobile, wearable and ubiquitous technologies · 2024Article
- Menopause Legacies: Designing to Record and Share Experiences of Menopause Across Generations.Proceedings of the ACM on human-computer interaction · 2024Article
- Opportunities to design better computer vison-assisted food diaries to support individuals and experts in dietary assessment: An observation and interview study with nutrition experts.PLOS digital health · 2024Article
- How Patient-Generated Data Enhance Patient-Provider Communication in Chronic Care: Field Study in Design Science Research.JMIR medical informatics · 2024Article
- MigraineTracker: Examining Patient Experiences with Goal-Directed Self-Tracking for a Chronic Health Condition.Proceedings of the SIGCHI conference on human factors in computing systems. CHI Conference · 2024Article
- An Exploratory Study on the Utility of Patient-Generated Health Data as a Tool for Health Care Professionals in Multiple Sclerosis Care.Methods of information in medicine · 2023Article
- Alerts and Collections for Automating Patients' Sensemaking and Organizing of Their Electronic Health Record Data for Reflection, Planning, and Clinical Visits: Qualitative Research-Through-Design Study.JMIR human factors · 2023Article
- Recommendations for the Quality Management of Patient-Generated Health Data in Remote Patient Monitoring: Mixed Methods Study.JMIR mHealth and uHealth · 2023Article
- Designing Flexible Longitudinal Regimens: Supporting Clinician Planning for Discontinuation of Psychiatric Drugs.Proceedings of the SIGCHI conference on human factors in computing systems. CHI Conference · 2022Article
5 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
Patient-generated data is increasingly common in chronic disease care management. Smartphone applications and wearable sensors help patients more easily collect health information. However, current commercial tools often do not effectively support patients and providers in collaboration surrounding these data. This paper examines patient expectations and current collaboration practices around patient-generated data. We survey 211 patients, interview 18 patients, and re-analyze a dataset of 21 provider interviews. We find that collaboration occurs in every stage of self-tracking and that patients and providers create boundary negotiating artifacts to support the collaboration. Building upon current practices with patient-generated data, we use these theories of patient and provider collaboration to analyze misunderstandings and privacy concerns as well as identify opportunities to better support these collaborations. We reflect on the social nature of patient-provider collaboration to suggest future development of the stage-based model of personal informatics and the theory of boundary negotiating artifacts.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.