ArticleEuropean journal of human genetics : EJHG2017
Complementarity between medical geneticists and genetic counsellors: its added value in genetic services in Europe.
Article in European journal of human genetics : EJHG, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
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Who cites it
19 citing papers in PubMed.
- Genomic medicine knowledge, self-assessment, and training needs among Turkish pediatricians: a cross-sectional survey.Journal of community genetics · 2026Article
- Empowering the "Empowerers": An Evaluation of Empowerment of Genetic Counselors in Patient-Facing Roles in Canada.Journal of genetic counseling · 2026Article
- Preparedness for working with genomic medicine among Swedish non-genetics physicians - a nation-wide survey study.Journal of community genetics · 2026Article
- Self-assessed knowledge of genomic medicine among non-genetics physicians - results from a nationwide Swedish survey.Journal of community genetics · 2025Article
- Working together: development of a genetic counselling curriculum in a medical genetics residency training program.Journal of community genetics · 2025Article
- Genomics as part of Portuguese undergraduate nursing programs: are we moving in the right direction?Journal of community genetics · 2025Article
- "Protection for the public, better use of resources and clearer lines": Interviews with genetic counselors and their colleagues on the need for regulation in Quebec.Journal of genetic counseling · 2025Article
- Thirty-years of genetic counselling education in Europe: a growing professional area.European journal of human genetics : EJHG · 2024Article
- The urgency for a change in genetics healthcare provision: views from Portuguese medical geneticists.Journal of community genetics · 2024Article
- Workshop report: Clinical training and integration of genetic counselors into interprofessional teams in the German-speaking countries.Genetics in medicine open · 2024Article
- The role of the Genetic Counsellor in the multidisciplinary team: the perception of geneticists in Europe.European journal of human genetics : EJHG · 2022Article
- Developing genetic counselling services in an underdeveloped healthcare setting.Journal of community genetics · 2021Article
- Perception of personalized medicine, pharmacogenomics, and genetic testing among undergraduates in Hong Kong.Human genomics · 2021Article
- The genetic counseling profession in Austria: Stakeholders' perspectives.Journal of genetic counseling · 2021Article
- Prospects and challenges for the genetic counsellor profession in the German-speaking countries: report of a workshop.Medizinische Genetik : Mitteilungsblatt des Berufsverbandes Medizinische Genetik e.V · 2021Article
- The composition and capacity of the clinical genetics workforce in high-income countries: a scoping review.Genetics in medicine : official journal of the American College of Medical Genetics · 2020Article
- Developing a national certification pathway for genetic counselors in Sweden-a short report.Journal of community genetics · 2020Article
- Regarding the rights and duties of Clinical Laboratory Geneticists in genetic healthcare systems; results of a survey in over 50 countries.European journal of human genetics : EJHG · 2019Article
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Clinical genetic services have progressed significantly the last few decades. This has led to the need for non-medical health-care professionals working as genetic counsellors in Europe and worldwide. However, there is no unified approach to genetic counsellors' role in health-care services in Europe, as in most countries the profession is still emerging and the educational backgrounds diverge noticeably, within and between countries. This qualitative study aims to describe the potential added value of genetic counsellors in clinical genetics teams and to explore their tasks and responsibilities in different European countries. A total of 143 participants providing genetic counselling in Europe at the time of the survey responded. The results show differences in activities of genetic counsellors, although there is a wide range of roles, which are similar. The ability to establish a quality relationship with consultands was frequently mentioned as one of the strengths of genetic counsellors, as well as a patient-centred approach. It is believed that genetic counsellors add a more holistic approach of psychosocial and familial dimensions of genetic concerns to the multidisciplinary teams. This study provides examples of successful integration of genetic counsellors in teams, as complementariness with medical geneticist became clear in several cases. Although the added value of genetic counsellors was manifested, professional recognition of genetic counsellors across Europe is still needed in order to support the quality of patients care and safety of practice.
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