ArticleThe Journal of urology2017
Psychological Adjustment of Parents of Children Born with Atypical Genitalia 1 Year after Genitoplasty.
Article in The Journal of urology, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 2 of them syntheses that pooled it.
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Who cites it
24 citing papers in PubMed, 2 syntheses or guidelines pooled it, 55 citations in OpenAlex.
- Reviewing next of kin regrets in surgical decision-making: cross-sectional analysis of systematically searched literature.Journal of patient-reported outcomes · 2023Pooled it
- Quality of life of parents with children with congenital abnormalities: a systematic review with meta-analysis of assessment methods and levels of quality of life.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022Pooled it
- Development and validation of a short version of the quality of life-DSD questionnaire for parents of young children with conditions affecting sex development.Endocrine connections · 2024Article
- Trajectories of illness uncertainty among parents of children with atypical genital appearance due to differences of sex development.Journal of pediatric psychology · 2024Article
- Differences of sex development and surgical decisions: focus group interviews with health care professionals in Norway.Health psychology and behavioral medicine · 2024Article
- Adverse Birth Experiences and Parent Adjustment Associated With Atypical Genital Appearance Due to Differences of Sex Development.Journal of pediatric psychology · 2023Article
- Parental Uncertainty Scale Factor Structure in Pediatric DSD With Ambiguous Genitalia.Journal of pediatric psychology · 2023Article
- Long-Term Impact of Diagnosed Fetal Anomaly on Parental Traumatic Stress, Resilience, and Relationship Satisfaction.Journal of pediatric psychology · 2023Article
- Medicalization of intersex and resistance: a commentary on Conway.International journal of impotence research · 2023Article
- A survey of healthcare professionals' perceptions of the decisional needs of parents with an infant born with a disorder/difference of sex development.Journal of pediatric urology · 2023Article
- Decisional regret about surgical and non-surgical issues after genitoplasty among caregivers of female infants with CAH.Journal of pediatric urology · 2022Article
- Mental health status of children with disorders of sexual development and their correlates.Frontiers in public health · 2022Article
- Standards of Care for the Health of Transgender and Gender Diverse People, Version 8.International journal of transgender health · 2022Article
- Factor Analysis of the Stigma Scale-Parent Version in Pediatric Disorders/Differences of Sex Development.Stigma and health · 2021Article
- Article
- Distress Trajectories for Parents of Children With DSD: A Growth Mixture Model.Journal of pediatric psychology · 2021Article
- Post-operative complications following masculinizing genitoplasty in moderate to severe genital atypia: results from a multicenter, observational prospective cohort study.Journal of pediatric urology · 2021Observational
- Post-operative complications following feminizing genitoplasty in moderate to severe genital atypia: Results from a multicenter, observational prospective cohort study.Journal of pediatric urology · 2020Observational
- Illness Uncertainty Longitudinally Predicts Distress Among Caregivers of Children Born With DSD.Journal of pediatric psychology · 2020Article
- If only… a systematic review and meta-analysis of social, temporal and counterfactual comparative thinking in PTSD.European journal of psychotraumatology · 2020Review
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Authors and funding
26 authors at 13 institutions in 1 country.
Funding
Abstract
purposeWe examined the psychological adjustment of parents of children born with moderate to severe genital atypia 12 months after their child underwent genitoplasty. MATERIALS AND
methodsParents were recruited longitudinally from a multicenter collaboration of 10 pediatric hospitals with specialty care for children with disorders/differences of sex development and/or congenital adrenal hyperplasia. Parents completed measures of depressive and anxious symptoms, illness uncertainty, quality of life, posttraumatic stress and decisional regret.
resultsCompared to levels of distress at baseline (before genitoplasty) and 6 months after genitoplasty, data from 25 mothers and 20 fathers indicated significant improvements in all psychological distress variables. However, a subset of parents continued endorsing clinically relevant distress. Some level of decisional regret was endorsed by 28% of parents, although the specific decision that caused regret was not specified.
conclusionsOverall the majority of parents were coping well 1 year after their child underwent genitoplasty. Level of decisional regret was related to having a bachelor's level of education, increased levels of illness uncertainty preoperatively and persistent illness uncertainty at 12 months after genitoplasty but was unrelated to postoperative complications.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.