Evidence map›Paper›PMID 28499772›Full record

Trial reportThe journal of allergy and clinical immunology. In practice

Exploring Patient Engagement: A Qualitative Analysis of Low-Income Urban Participants in Asthma Research.

Amy Korwin, Heather Black, Luzmercy Perez, Knashawn H Morales, Heather Klusaritz, Xiaoyan Han, Jingru Huang, Marisa Rogers, Grace Ndicu, Andrea J Apter

Registry-linked trialOpen access · greenAbstract readRandomized Controlled Trial
PubMed Full text at PMC Publisher
In one paragraph

Trial report in The journal of allergy and clinical immunology. In practice. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT01972308 (A Patient Advocate to Improve Real-world Asthma Management for Inner City Adults), which is not on this map. Cited by 5 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed, 1 pooled it
2.0field-weighted citation impact, top 12% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT01972308 nacompletednot on this map

A Patient Advocate to Improve Real-world Asthma Management for Inner City Adults

TypeinterventionalSponsorUniversity of PennsylvaniaRan2013 to 2022Enrolled312ConditionsAsthma, CommunicationArmsPatient Advocate, Usual Care
3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 1 synthesis or guideline pooled it, 8 citations in OpenAlex.

  1. Pooled it
  2. Trial
  3. Review
  4. Life Course of Asthma.Advances in experimental medicine and biology · 2023
    Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 2 institutions in 1 country.

Amy KorwinDepartment of Medicine, Hospital of the University of Pennsylvania, Philadelphia, Pa.
Heather BlackDivision of Pulmonary, Allergy, Critical Care Medicine, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pa.
Luzmercy PerezDivision of Pulmonary, Allergy, Critical Care Medicine, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pa.
Knashawn H MoralesDepartment of Biostatistics and Epidemiology, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pa.
Heather KlusaritzDepartment of Family Medicine and Community Health, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pa.
Xiaoyan HanDepartment of Biostatistics and Epidemiology, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pa.
Jingru HuangDivision of Pulmonary, Allergy, Critical Care Medicine, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pa.
Marisa RogersDepartment of Medicine, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pa.
Grace NdicuDivision of Pulmonary, Allergy, Critical Care Medicine, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pa.
Andrea J ApterDivision of Pulmonary, Allergy, Critical Care Medicine, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pa; Department of Medicine, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pa. Electronic address: Andrea.Apter@uphs.upenn.edu.
University of Pennsylvania · USHospital of the University of Pennsylvania · US

Funding

Translational Research Support CoreP30ES013508 · NIEHS · UNIVERSITY OF PENNSYLVANIA · PI A. Clementina Mesaros · 2006 to 2026
$35.3M
A Patient Advocate to improve real-world asthma management for inner city adultsR18HL116285 · NHLBI · UNIVERSITY OF PENNSYLVANIA · PI APTER, ANDREA J. · 2013 to 2017
$3.6M
NHLBI NIH HHS R18 HL116285NIEHS NIH HHS P30 ES013508
6 · The paper itself

Abstract

backgroundUncontrolled asthma is a common highly morbid condition with worse outcomes in low-income and minority patients in part due to barriers accessing and engaging with health care. We developed a patient advocate to educate about and assist with navigating access to care and provider-patient communication. Participants completed an End of Study Questionnaire (ESQ) that was analyzed to assess experience and engagement with the protocol.

objectiveThis study uses qualitative analysis to evaluate participant experience with the patient advocate and control group interventions.

methodsThe ESQ aimed to prompt an open-ended discussion of study experience. Questions were developed from patient focus groups about the patient advocate intervention (PAI), and were revised based on early responses. The questionnaire was administered after 12 months of study participation: 6 months of control or PAI, followed by 6 months of follow-up. Answers were evaluated using qualitative coding and a grounded theory analytical approach.

resultsA total of 102 low-income and minority adults with moderate or severe asthma who had completed the study protocol at the time of publication (approximately one-third of total participants) found PAI and control group activities acceptable. Four themes emerged from both groups: (1) appreciation of interpersonal and educational interaction, (2) perception of improved health care adherence, (3) preparedness for physician appointments, (4) improved patient-provider communication. Attention from study personnel and review of asthma-related information was unanimously well received and empowered patients' active health care participation.

conclusionsPatient engagement and empowerment were elicited by perceived education and personal attention. This study suggests a low-resource, feasible method to improve patient engagement.

Indexed as

Patient AdvocacyPovertyUrban PopulationAdultAsthmaFemaleFollow-Up StudiesHealth Services AccessibilityHumansMalePatient-Centered CarePatient Education as TopicPatient ParticipationPhysician-Patient RelationsSurveys and QuestionnairesAccess to health careAdherenceAsthmaHealth disparitiesPatient advocatePatient engagement

Identifiers

PMID28499772
PMCPMC5681420
OpenAlexW2587566713

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.