Evidence map›Paper›PMID 28499372›Full record

ArticleBMC musculoskeletal disorders2017

Persons with rheumatoid arthritis challenge the relevance of the health assessment questionnaire: a qualitative study of patient perception.

David Ebbevi, Anna Essén, Helena Hvitfeldt Forsberg

Open access · goldAbstract read
In one paragraph

Article in BMC musculoskeletal disorders, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
0.9field-weighted citation impact, top 26% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 9 citations in OpenAlex.

  1. Observational
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors at 2 institutions in 1 country.

David EbbeviDepartment of Learning, Informatics, Management and Ethics, Karolinska Institute, Tomtebodavägen 18A, 171 77, Stockholm, Sweden. david.ebbevi@ki.se.ORCID 0000-0002-5069-478X
Anna EssénCenter for Human Resource Management and Knowledge Work, Stockholm School of Economics, Stockholm, Sweden.
Helena Hvitfeldt ForsbergDepartment of Learning, Informatics, Management and Ethics, Karolinska Institute, Tomtebodavägen 18A, 171 77, Stockholm, Sweden.
Karolinska Institutet · SEStockholm School of Economics · SE

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe Stanford Health Assessment Questionnaire-Disability Index (HAQ) is widely used to measure functional ability in persons with Rheumatoid Arthritis (RA). The instrument was developed with limited involvement from persons with RA, and their perception of the instrument has not been studied in depth. The aim of this study was to explore how persons with RA experience the use of the HAQ in care.

methodsThe study used secondary data analysis. Persons with RA participated in semi-structured interviews in previous research projects. Thirty-nine interviews were included based on data fit, and thematic analysis applied.

resultsThe participants questioned the relevance of the HAQ but nevertheless experienced that the instrument had a profound effect on their understanding of health and how care is delivered. The analysis resulted in three themes: Problems with individual items, meaning of the summative score, and effects on care and health perceptions.

conclusionsTo make the HAQ relevant to persons with RA, it needs to be revised or to include an option to select items most meaningful to the respondent. To ensure relevance, the HAQ update should preferably be co-created by researchers, clinicians and persons with RA.

Indexed as

Disability EvaluationHealth StatusQualitative ResearchArthritis, RheumatoidFemaleHumansMalePatient PreferenceSurveys and QuestionnairesOutcomes assessmentPatient reported outcome measuresQualitative ResearchRheumatoid ArthritisThematic analysis

Identifiers

PMID28499372
PMCPMC5429524
OpenAlexW2594147539

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.