Evidence map›Paper›PMID 28496382›Full record

ArticleJournal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association2017

Elements of Family-Centered Care in the Pediatric Intensive Care Unit: An Integrative Review.

Claire A Richards, Helene Starks, M Rebecca O'Connor, Ardith Z Doorenbos

Abstract read
In one paragraph

Article in Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers.

0numbers the graph read from it
0cells of the map it votes in
24citing papers in PubMed
6.2field-weighted citation impact, top 3% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

24 citing papers in PubMed, 71 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 2 institutions in 1 country.

Claire A RichardsBox 357266, Seattle, WA 98195-7266, Department of Biobehavioral Nursing and Health Systems, School of Nursing, University of Washington, Seattle, 919-998-9022.
Helene StarksSchool of Public Health, Department of Bioethics and Humanities, University of Washington, Seattle.
M Rebecca O'ConnorDepartment of Family and Child Nursing, School of Nursing, University of Washington, Seattle.
Ardith Z DoorenbosDepartment of Biobehavioral Nursing and Health Systems, School of Nursing, University of Washington, Seattle.
Neurobehavioral Systems · USUniversity of Washington · US

Funding

NRSA Training CoreTL1TR002318 · NCATS · UNIVERSITY OF WASHINGTON · PI Megan Moore · 2017 to 2026
$8.4M
Improving Family Outcomes with a Communication Intervention in the Pediatric ICUR01NR011179 · NINR · SEATTLE CHILDREN'S HOSPITAL · PI HAYS, ROSS M · 2009 to 2013
$2.7M
Institute of Translational Health SciencesTL1TR000422 · NCATS · UNIVERSITY OF WASHINGTON · PI DISIS, MARY L. · 2012 to 2016
$2.1M
Applying Technology to Problems in Pain and Symptom ManagementK24NR015340 · NINR · UNIVERSITY OF WASHINGTON · PI DOORENBOS, ARDITH Z · 2014 to 2018
$842k
NCATS NIH HHS TL1 TR000422NCATS NIH HHS TL1 TR002318NINR NIH HHS K24 NR015340NINR NIH HHS R01 NR011179
6 · The paper itself

Abstract

This paper reports result from a systematic search and thematic analysis of qualitative literature to identify key issues related to family-centered care, behaviors, and communication skills that support the parental role and improve patient and family outcomes in the PICU. Five themes were identified: 1) sharing information; 2) hearing parental voices; 3) making decisions for or with parents; 4) negotiating roles; and 5) individualizing communication. These themes highlight several gaps between how parents want to be involved and perceive clinicians engage them in the care of their child. Parental preferences for involvement differ in the domains of information sharing, decision making, and power-sharing across a spectrum of parental roles from parents as care provider to care recipient. The PICU setting may place clinicians in a double bind trying to both engage families and protect them from distress. Asking families of critically ill children about their preferences for participation across these domains may improve clinician-family relationships.

Indexed as

Family NursingHealth CommunicationIntensive Care Units, PediatricPatient-Centered CareProfessional-Family RelationsTerminal Care

Identifiers

PMID28496382
PMCPMC5421392
OpenAlexW2921860235

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.