ArticleHealth and quality of life outcomes2017
Domains of quality of life freely expressed by cancer patients and their caregivers: contribution of the SEIQoL.
Article in Health and quality of life outcomes, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
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Who cites it
9 citing papers in PubMed.
- Measuring and valuing spillover effects in caregivers and families: A scoping review.PloS one · 2026Article
- Quality of Life of Caregivers of Patients with Cancer: A Cross-Sectional Study.Healthcare (Basel, Switzerland) · 2025Article
- Impact of Systemic Treatments on Outcomes and Quality of Life in Patients with RAS-Positive Stage IV Colorectal Cancer: A Systematic Review.Diseases (Basel, Switzerland) · 2024Review
- Comprehensive symptom assessment using Integrated Palliative care Outcome Scale in hospitalized heart failure patients.ESC heart failure · 2022Article
- What Defines Quality of Life for Older Patients Diagnosed with Cancer? A Qualitative Study.Cancers · 2022Article
- The Systematic Workplace-Improvement Needs Generation (SWING): Verifying a Worker-Centred Tool for Identifying Necessary Workplace Improvements in a Nursing Home in Japan.International journal of environmental research and public health · 2022Article
- Quality of life assessments in clinical practice using either the EORTC-QLQ-C30 or the SEIOQL-DW: a randomized study.Journal of patient-reported outcomes · 2021Article
- Individual quality of life in spousal ALS patient-caregiver dyads.Health and quality of life outcomes · 2020Article
- Post-stroke Quality of Life Index: A quality of life tool for stroke survivors from Sri Lanka.Health and quality of life outcomes · 2020Article
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe purposes of this study, performed on a large sample of cancer patient-caregiver dyads, were: i) to simultaneously investigate, using an individualized quality of life (QoL) measure (Schedule for the Evaluation of Individual QoL, SEIQoL), the QoL domains freely expressed by cancer patients and their caregivers, and ii) to explore overlapping between the SEIQoL assessment and QoL assessment using traditional instruments.
methodsThe study employed a cross-sectional design including cancer patients who were going to receive chemotherapy treatment and their caregivers. Quality of life was assessed using condition-specific questionnaires (EORTC QLQ-C30 and CarGOQoL), generic health-related questionnaire (SF-36), and open individualized measure (SEIQoL).
resultsThe final sample included 205 patient-caregiver dyads. From the SEIQoL, Family, Health, and Leisures were the most freely expressed QoL domains by patients and caregivers, but reported with different weights. Love life and financial issues were less spontaneously mentioned. The SEIQoL index was moderately correlated to the condition-specific QoL questionnaires (R lower than |0.40|) and to SF-36 (correlation coefficients: R ranging from 0.17 to 0.31).
conclusionIndividualized QoL measures allow individuals to spontaneously express important, non-predefined domains. This study highlights the need to explore QoL using a combination of individualized questionnaires and standardized questionnaires, capturing complementary facets that patients consider important in their life.
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