ArticlePalliative medicine2018
Changing place of death in children who died after discharge from paediatric intensive care units: A national, data linkage study.
Article in Palliative medicine, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
10 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Predictors for place of death among children:A systematic review and meta-analyses of recent literature.European journal of pediatrics · 2020Pooled it
- Causes of death in children with congenital anomalies up to age 10 in eight European countries.BMJ paediatrics open · 2023Article
- Development of a research-based classification of approaches to paediatric palliative medicine service provision within children's and young adults' hospices: A mixed methods study.Palliative medicine · 2022Article
- Inequality in place-of-death among children: a Danish nationwide study.European journal of pediatrics · 2022Article
- Focuses and trends of the studies on pediatric palliative care：A bibliometric analysis from 2004 to 2018.International journal of nursing sciences · 2021Article
- Long-Term Follow-Up of Legacy Services Offered by Children's Hospitals in the United States.Palliative medicine reports · 2021Article
- Home or hospital as the place of end-of-life care and death: A grounded theory study of parents' decision-making.Palliative medicine · 2021Article
- Advances and Challenges in European Paediatric Palliative Care.Medical sciences (Basel, Switzerland) · 2020Article
- Differences in Advance Care Planning and Circumstances of Death for Pediatric Patients Who Do and Do Not Receive Palliative Care Consults: A Single-Center Retrospective Review of All Pediatric Deaths from 2012 to 2016.Journal of palliative medicine · 2019Article
- Epidemiology of childhood death in Australian and New Zealand intensive care units.Intensive care medicine · 2019Article
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Authors and funding
3 authors.
Funding
Abstract
backgroundAlthough child mortality is decreasing, more than half of all deaths in childhood occur in children with a life-limiting condition whose death may be expected.
aimTo assess trends in place of death and identify characteristics of children who died in the community after discharge from paediatric intensive care unit.
designNational data linkage study. SETTING/
participantsAll children resident in England and Wales when admitted to a paediatric intensive care unit in the United Kingdom (1 January 2004 and 31 December 2014) were identified in the Paediatric Intensive Care Audit Network dataset. Linkage to death certificate data was available up to the end of 2014. Place of death was categorised as hospital (hospital or paediatric intensive care unit) or community (hospice, home or other) for multivariable logistic modelling.
resultsThe cohort consisted of 110,328 individuals. In all, 7709 deaths occurred after first discharge from paediatric intensive care unit. Among children dying, the percentage in-hospital at the time of death decreased from 83.8% in 2004 to 68.1% in 2014; 852 (0.8%) of children were discharged to palliative care. Children discharged to palliative care were eight times more likely to die in the community than children who died and had not been discharged to palliative care (odds ratio = 8.06 (95% confidence interval = 6.50-10.01)).
conclusionsThe proportion of children dying in hospital is decreasing, but a large proportion of children dying after discharge from paediatric intensive care unit continue to die in hospital. The involvement of palliative care at the point of discharge has the potential to offer choice around place of care and death for these children and families.
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