Evidence map›Paper›PMID 28493205›Full record

ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2017

Development of the life impact burn recovery evaluation (LIBRE) profile: assessing burn survivors' social participation.

Lewis E Kazis, Molly Marino, Pengsheng Ni, Marina Soley Bori, Flor Amaya, Emily Dore, Colleen M Ryan, Jeff C Schneider, Vivian Shie, Amy Acton and 1 more

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In one paragraph

Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 36 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
36citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

36 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Physical, Psychological, and Social Outcomes in Pediatric Burn Survivors Ages 5 to 18 Years: A Systematic Review.Journal of burn care & research : official publication of the American Burn Association · 2022
    Pooled it
  2. Pooled it
  3. Review
  4. Article
  5. Article
  6. Current Status of US Children's Burn Care and Opportunities for Change.Annals of surgery open : perspectives of surgical history, education, and clinical approaches · 2026
    Review
  7. Development for the Teen-Aged Life Impact Burn Recovery Evaluation (TA-LIBRE12-19) Profile.Journal of burn care & research : official publication of the American Burn Association · 2025
    Article
  8. Review
  9. Article
  10. Measuring the Social Impact of Burn Injuries in Australia: An Adaptation of the Life Impact Burn Recovery Evaluation-The Aus-LIBRE Profile.Journal of burn care & research : official publication of the American Burn Association · 2025
    Article
  11. Fractional CO2 Laser for Burn Scars: A Comparison of Patient-Reported Outcomes Between Those With and Without Laser Treatment.Journal of burn care & research : official publication of the American Burn Association · 2024
    Article
  12. Article
  13. Article
  14. Article
  15. Development of the Preschool Life Impact Burn Recovery Evaluation (PS-LIBRE1-5) Profile.Journal of burn care & research : official publication of the American Burn Association · 2024
    Article
  16. Impact of the Early COVID-19 Pandemic on Burn Care: A Multi-National Study.Journal of burn care & research : official publication of the American Burn Association · 2023
    Article
  17. Article
  18. Review
  19. Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Lewis E KazisDepartment of Health Law, Policy, and Management, Center for the Assessment of Pharmaceutical Practices (CAPP), Boston University School of Public Health, Boston, MA, USA.
Molly MarinoHealth & Disability Research Institute, Boston University School of Public Health, 715 Albany Street, T5W, Boston, MA, 02118, USA. memarino@bu.edu.ORCID 0000-0002-9978-3038
Pengsheng NiHealth & Disability Research Institute, Boston University School of Public Health, 715 Albany Street, T5W, Boston, MA, 02118, USA.
Marina Soley BoriDepartment of Health Law, Policy, and Management, Center for the Assessment of Pharmaceutical Practices (CAPP), Boston University School of Public Health, Boston, MA, USA.
Flor AmayaDepartment of Health Law, Policy, and Management, Center for the Assessment of Pharmaceutical Practices (CAPP), Boston University School of Public Health, Boston, MA, USA.
Emily DoreDepartment of Health Law, Policy, and Management, Center for the Assessment of Pharmaceutical Practices (CAPP), Boston University School of Public Health, Boston, MA, USA.
Colleen M RyanDepartment of Surgery, Massachusetts General Hospital, Boston, MA, USA.
Jeff C SchneiderHarvard Medical School, Boston, MA, USA.
Vivian ShieDepartment of Physical Medicine and Rehabilitation, Spaulding Rehabilitation Hospital, Boston, MA, USA.
Amy ActonThe Phoenix Society for Burn Survivors, Grand Rapids, MI, USA.
Alan M JetteHealth & Disability Research Institute, Boston University School of Public Health, 715 Albany Street, T5W, Boston, MA, 02118, USA.

Funding

ACL HHS 90DP0055NCCDPHP CDC HHS U48 DP000055
6 · The paper itself

Abstract

purposeMeasuring the impact burn injuries have on social participation is integral to understanding and improving survivors' quality of life, yet there are no existing instruments that comprehensively measure the social participation of burn survivors. This project aimed to develop the Life Impact Burn Recovery Evaluation Profile (LIBRE), a patient-reported multidimensional assessment for understanding the social participation after burn injuries.

methods192 questions representing multiple social participation areas were administered to a convenience sample of 601 burn survivors. Exploratory factor analysis and confirmatory factor analysis (CFA) were used to identify the underlying structure of the data. Using item response theory methods, a Graded Response Model was applied for each identified sub-domain. The resultant multidimensional LIBRE Profile can be administered via Computerized Adaptive Testing (CAT) or fixed short forms.

resultsThe study sample included 54.7% women with a mean age of 44.6 (SD 15.9) years. The average time since burn injury was 15.4 years (0-74 years) and the average total body surface area burned was 40% (1-97%). The CFA indicated acceptable fit statistics (CFI range 0.913-0.977, TLI range 0.904-0.974, RMSEA range 0.06-0.096). The six unidimensional scales were named: relationships with family and friends, social interactions, social activities, work and employment, romantic relationships, and sexual relationships. The marginal reliability of the full item bank and CATs ranged from 0.84 to 0.93, with ceiling effects less than 15% for all scales.

conclusionsThe LIBRE Profile is a promising new measure of social participation following a burn injury that enables burn survivors and their care providers to measure social participation.

Indexed as

AdultBurnsFemaleHumansMaleMiddle AgedQuality of LifeSocial ParticipationSurvivorsBurnsComputerized adaptive testItem response theorySocial reintegration

Identifiers

PMID28493205
PMCPMC10064494

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.