ArticleJournal of autism and developmental disorders2017
Autism in Southeast Europe: A Survey of Caregivers of Children with Autism Spectrum Disorders.
Article in Journal of autism and developmental disorders, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
27 citing papers in PubMed, 1 synthesis or guideline pooled it, 66 citations in OpenAlex.
- Systematic Review of Disparities and Differences in the Access and Use of Allied Health Services Amongst Children with Autism Spectrum Disorders.Journal of autism and developmental disorders · 2021Pooled it
- Perspectives of Autistic People, Parents, and Healthcare Professionals on Communication in Healthcare Settings and Related Needs in Georgia: A Qualitative Study.Journal of autism and developmental disorders · 2026Article
- Scoping review: Facilitators, barriers, and cultural adaptations in the caregiver skills training program for children with developmental concerns.Autism : the international journal of research and practice · 2026Article
- Differences in needs and availability of healthcare, education and social protection between school-age children and youth with autistic spectrum disorder and their families in Serbia.International journal of developmental disabilities · 2026Article
- The Relationship Between Fatigue and Quality of Life in the Turkish Mothers of Children with Autism Spectrum Disorder.Journal of autism and developmental disorders · 2025Article
- Autism in Serbia: insights into parental experiences, support networks, and systemic obstacles.International journal of developmental disabilities · 2025Article
- The Well-being and Support Needs of Australian Caregivers of Neurodiverse Children.Journal of autism and developmental disorders · 2024Article
- Implementing an Early Detection Program for Autism Spectrum Disorders in the Polish Primary Healthcare Setting-Possible Obstacles and Experiences from Online ASD Screening.Brain sciences · 2024Article
- Urban and rural differences in needs, service use and satisfaction among caregivers of autistic children in Morocco.Autism : the international journal of research and practice · 2024Article
- Autism care pathway in Europe.European psychiatry : the journal of the Association of European Psychiatrists · 2023Article
- Looking at Europe's recent behavioral telehealth practices for children and families impacted by neurodevelopmental disabilities.International journal of developmental disabilities · 2023Review
- Profile of Service Use and Barriers to Access to Care among Brazilian Children and Adolescents with Autism Spectrum Disorders.Brain sciences · 2022Article
- Diagnostic paths and service needs of children with autism spectrum disorder and with other neurodevelopmental disorders in Bulgaria.Frontiers in psychiatry · 2022Article
- Parental experiences raising children with autism spectrum disorder in Eastern Europe: a scoping review.International journal of developmental disabilities · 2022Article
- Age of diagnosis, service access, and rights of autistic individuals in Argentina: Caregivers reports of changes and similarities across time.Frontiers in psychiatry · 2022Article
- A model of internalized stigma in parents of individuals with disabilities.International journal of developmental disabilities · 2022Article
- Practice Patterns and Potential Barriers to Early Diagnosis of Autism in Bosnia and Herzegovina: A Preliminary Study.Journal of autism and developmental disorders · 2021Article
- High Depression Symptoms and Burnout Levels Among Parents of Children with Autism Spectrum Disorders: A Multi-Center, Cross-Sectional, Case-Control Study.Journal of autism and developmental disorders · 2021Article
- Practice Patterns for Early Screening and Evaluation for Autism Spectrum Disorder Diagnosis in Bulgaria.Journal of autism and developmental disorders · 2021Article
- Early Detection, Diagnosis and Intervention Services for Young Children with Autism Spectrum Disorder in the European Union (ASDEU): Family and Professional Perspectives.Journal of autism and developmental disorders · 2020Article
Corrections and comments
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Authors and funding
6 authors at 6 institutions in 5 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The aim of this study was to understand the diagnostic, service and lived experiences of families affected by ASD in Southeast Europe. A total of 758 caregivers from Albania, Bulgaria, Croatia and Turkey were surveyed from 2013 to 2015 about characteristics of the child with ASD; service encounters; and caregiver perceptions. The average age at first concern was 24.4 months (SD 11.8) and at diagnosis, 40.0 months (SD 19.0). Psychiatrists were the most common diagnostician; most children received some ASD-related service, most frequently speech and language therapy. Caregivers endorsed challenges in access to care and perceived stigma. Despite country differences, findings relative to age at first concern, disparities in access and service utilization, and stigma speak to common regional needs.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.