ArticlePalliative & supportive care2018
Supporting home hospice family caregivers: Insights from different perspectives.
Article in Palliative & supportive care, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
19 citing papers in PubMed, 1 synthesis or guideline pooled it, 33 citations in OpenAlex.
- The needs of families who care for individuals with kidney failure on comprehensive conservative care: A qualitative systematic review.Journal of renal care · 2022Pooled it
- Bereaved informal caregivers' experiences with a Canadian home hospice program: a qualitative study.BMC palliative care · 2026Article
- Variation in Hospice Aide Care by Residential Setting.Journal of palliative medicine · 2024Article
- Top Ten Tips Palliative Care Clinicians Should Know About Caring for Family Caregivers.Journal of palliative medicine · 2024Article
- Close but Not Close Enough: How Distance Caregiving is Associated with Hospice Family Caregiver Hospice Communication Experiences.Health communication · 2024Article
- Nursing activities for health promotion in palliative home care: an integrative review.Palliative care and social practice · 2024Review
- Adapting an Intervention to Address Barriers to Pain Management in Hospice: Formative Research to Inform EMPOWER-D for Dementia Caregivers.Palliative medicine reports · 2024Article
- The Burden of having to Wonder: Hospice Caregiving Experiences of LGBTQ+ Cancer Family Caregivers.The American journal of hospice & palliative care · 2024Article
- Determinants of quality of life in primary family caregivers of patients with advanced cancer: a comparative study in southern China.Frontiers in public health · 2023Article
- Factors Related to Family Caregivers' Readiness for the Hospital Discharge of Advanced Cancer Patients.International journal of environmental research and public health · 2022Article
- The experiences of home care team members regarding the needs of family caregivers of heart failure patients in home health care services in Iran: A qualitative study.ARYA atherosclerosis · 2022Article
- Receipt of Hospice Aide Visits Among Medicare Beneficiaries Receiving Home Hospice Care.Journal of pain and symptom management · 2022Article
- Patterns of stress and support in social support networks of in-home hospice cancer family caregivers.Journal of social and personal relationships · 2021Article
- Shared Medication PLanning In (SIMPLIfy) Home Hospice: An Educational Program to Enable Goal-Concordant Prescribing In Home Hospice.Journal of pain and symptom management · 2021Article
- Supportive care needs and service use during palliative care in family caregivers of patients with advanced cancer: a prospective longitudinal study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
- Current Advances in Palliative & Hospice Care: Problems and Needs of Relatives and Family Caregivers During Palliative and Hospice Care-An Overview of Current Literature.Medical sciences (Basel, Switzerland) · 2019Review
- Mobile Health Technology Is Here-But Are Hospice Informal Caregivers Receptive?The American journal of hospice & palliative care · 2018Article
- Shared Decision Making in Home Hospice Nursing Visits: A Qualitative Study.Journal of pain and symptom management · 2018Article
- Supporting dementia family care partners during COVID-19: Perspectives from hospice staff.Geriatric nursing (New York, N.Y.)Article
Corrections and comments
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Authors and funding
7 authors at 4 institutions in 1 country.
Funding
Abstract
ABSTRACTObjective:Our intention was to describe and compare the perspectives of national hospice thought leaders, hospice nurses, and former family caregivers on factors that promote or threaten family caregiver perceptions of support.
methodNationally recognized hospice thought leaders (n = 11), hospice nurses (n = 13), and former family caregivers (n = 14) participated. Interviews and focus groups were audiotaped and transcribed. Data were coded inductively, and codes were hierarchically grouped by topic. Emergent categories were summarized descriptively and compared across groups.
resultsFour categories linked responses from the three participant groups (95%, 366/384 codes): (1) essentials of skilled communication (30.6%), (2) importance of building authentic relationships (28%), (3) value of expert teaching (22.4%), and (4) critical role of teamwork (18.3%). The thought leaders emphasized communication (44.6%), caregivers stressed expert teaching (51%), and nurses highlighted teamwork (35.8%). Nurses discussed teamwork significantly more than caregivers (z = 2.2786), thought leaders discussed communication more than caregivers (z = 2.8551), and caregivers discussed expert teaching more than thought leaders (z = 2.1693) and nurses (z = 2.4718; all values of p < 0.05). SIGNIFICANCE OF
resultsOur findings suggest differences in priorities for caregiver support across family caregivers, hospice nurses, and thought leaders. Hospice teams may benefit from further education and training to help cross the schism of family-centered hospice care as a clinical ideal to one where hospice team members can fully support and empower family caregivers as a hospice team member.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.