Trial reportBMJ open2017
Can care staff accurately assess health-related quality of life of care home residents? A secondary analysis of data from the OPERA trial.
Trial report in BMJ open, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
10 citing papers in PubMed.
- A group intervention to improve quality of life for people with advanced dementia living in care homes: the Namaste feasibility cluster RCT.Health technology assessment (Winchester, England) · 2020Trial
- Article
- Comparison of quality of life of older adults living in foster families versus nursing homes. Results from the KASA studies.The journal of nutrition, health & aging · 2024Article
- Observational
- Measuring the quality of life of long-term care service users in Japan: a cross-sectional questionnaire study.BMC geriatrics · 2022Article
- Exploring changes to resident thriving and associated factors in Swedish nursing homes: A repeated cross-sectional study.International journal of geriatric psychiatry · 2022Article
- Inter-rater reliability of care home staff's proxy judgements with residents' assessments of their own health-related quality of life: an analysis of the PATCH trial EQ-5D data.Age and ageing · 2021Article
- Does performance-based remuneration improve outcomes in the treatment of hip fracture?The bone & joint journal · 2021Observational
- Feasibility and validity of EQ-5D-5L proxy by nurses in measuring health-related quality of life of nursing home residents.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021Article
- Baseline quality of life in people with hip fracture: results from the multicentre WHiTE cohort study.Bone & joint research · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
Abstract
objectivesTo compare assessments of health-related quality of life outcomes of care home residents reported by residents and care staff acting as proxies.
designLinear regression and bivariate modelling of paired assessments from care home residents and care staff.
setting78 care homes in 2 regions in England.
participants556 care home residents aged 65 years or older and care staff.
main outcome measuresEQ-5D utility scores and responses to individual EQ-5D dimensions.
resultsThe depression status, cognitive function, physical function, activities of daily living, social engagement, pain and dementia diagnosis of care home residents all predicted discrepancies in EQ-5D reporting. For residents with no depressive symptoms, care staff underestimated residents' mean EQ-5D utility score by 0.134 (95% CI 0.097 to 0.171) and for those with severe depressive symptoms they overstated mean utility scores by 0.222 (95% CI 0.104 to 0.339). With increasing levels of pain in residents the care staff progressively estimated EQ-5D utilities above self-reported values; by 0.236 (95% CI 0.003 to 0.469) in those with the second highest pain scores. For those with no cognitive impairment, proxies overstated mean utility scores by 0.097 (95% CI 0.049 to 0.146), while for those with severe cognitive impairment they underestimated mean utility scores by 0.192 (95% CI 0.143 to 0.241).
conclusionsCare home residents and staff appear to differ fundamentally in their assessment of the health-related quality of life, as measured by the EQ-5D, of residents with different levels of depression, pain and/or cognitive impairment. This could lead to interventions evaluated using proxy-based quality-adjusted life year estimates being wrongly rejected on cost-effectiveness grounds and may also make it difficult for carers to act as advocates with health and social care professionals for certain groups of residents. A more resident-focussed approach to assessment of health-related quality of life is needed.
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