Evidence map›Paper›PMID 28445608›Full record

ArticlePerspectives on sexual and reproductive health2017

Sexual and Gender Minority Adolescents' Views On HIV Research Participation and Parental Permission: A Mixed-Methods Study.

Brian Mustanski, Ryan Coventry, Kathryn Macapagal, Miriam R Arbeit, Celia B Fisher

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Perspectives on sexual and reproductive health, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 35 papers, 4 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
35citing papers in PubMed, 4 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

35 citing papers in PubMed, 4 syntheses or guidelines pooled it.

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  16. "Physical Sex Is Over for Now": Impact of COVID-19 on the Well-Being and Sexual Health of Adolescent Sexual Minority Males in the U.S.The Journal of adolescent health : official publication of the Society for Adolescent Medicine · 2020
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  17. Using Intervention Mapping to Developmentally Adapt an Online HIV Risk Reduction Program for Adolescent Men Who Have Sex with Men.Prevention science : the official journal of the Society for Prevention Research · 2020
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Brian Mustanskiprofessor, Department of Medical Social Sciences, and director, Institute for Sexual and Gender Minority Health and Wellbeing, Feinberg School of Medicine, Northwestern University, Chicago.
Ryan Coventryresearch project coordinator, Department of Medical Social Sciences and Institute for Sexual and Gender Minority Health and Wellbeing, Feinberg School of Medicine, Northwestern University, Chicago.
Kathryn Macapagalresearch assistant professor, Department of Medical Social Sciences and Institute for Sexual and Gender Minority Health and Wellbeing, Feinberg School of Medicine, Northwestern University, Chicago.
Miriam R Arbeitpostdoctoral fellow, Center for Ethics Education, Fordham University, New York.
Celia B Fisherdirector, Center for Ethics Education, Fordham University, New York.

Funding

Ethics in HIV Prevention Research Involving LGBT YouthR01MD009561 · NIMHD · NORTHWESTERN UNIVERSITY AT CHICAGO · PI FISHER, CELIA B, MUSTANSKI, BRIAN · 2014 to 2017
$2.0M
NIMHD NIH HHS R01 MD009561
6 · The paper itself

Abstract

contextSexual and gender minority adolescents are underrepresented in HIV research, partly because institutional review boards (IRBs) are reluctant to waive parental permission requirements for these studies. Understanding teenagers' perspectives on parental permission and the risks and benefits of participating in HIV research is critical to informing evidence-based IRB decisions.

methodsData from 74 sexual and gender minority adolescents aged 14-17 who participated in an online focus group in 2015 were used to examine perspectives on the risks and benefits of participation in a hypothetical HIV surveillance study and the need for parental permission and adequate protections. Data were analyzed thematically; mixed methods analyses examined whether concerns about parental permission differed by whether teenagers were out to their parents.

resultsMost adolescents, especially those who were not out to their parents, would be unwilling to participate in an HIV study if parental permission were required. Perceived benefits of participation included overcoming barriers to HIV testing and contributing to the health of sexual and gender minority youth. Few risks of participation were identified. Adolescents suggested steps that researchers could take to facilitate informed decision making about research participation and ensure minors' safety in the absence of parental permission; these included incorporating multimedia presentations into the consent process and explaining researchers' motivations for conducting the study.

conclusionsRespondents believed that the benefits of HIV surveillance research outweighed the risks. Requiring parental permission may exclude many sexual and gender minority teenagers from taking part in HIV research, especially if they are not out.

Indexed as

AdolescentFemaleFocus GroupsHIV InfectionsHumansMaleParent-Child RelationsParentsQualitative ResearchResearch DesignResearch SubjectsSexual and Gender MinoritiesSexual Behavior

Identifiers

PMID28445608
PMCPMC5768203

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.