Evidence map›Paper›PMID 28438584›Full record

ArticleJournal of pain and symptom management2017

Strategies for Enhancing Family Participation in Research in the ICU: Findings From a Qualitative Study.

Danae Dotolo, Elizabeth L Nielsen, J Randall Curtis, Ruth A Engelberg

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of pain and symptom management, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Trial
  3. Review
  4. Article
  5. Article
  6. Barriers and challenges in the process of including critically ill patients in clinical studies.Scandinavian journal of trauma, resuscitation and emergency medicine · 2020
    Observational
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Danae DotoloSchool of Social Work, University of Washington, Seattle, Washington, USA. Electronic address: danaed@uw.edu.
Elizabeth L NielsenDivision of Pulmonary and Critical Care, University of Washington, Seattle, Washington, USA.
J Randall CurtisDivision of Pulmonary and Critical Care, University of Washington, Seattle, Washington, USA.
Ruth A EngelbergDivision of Pulmonary and Critical Care, University of Washington, Seattle, Washington, USA.

Funding

Randomized trial of an interdisciplinary communication intervention to improve paR01NR005226 · NINR · UNIVERSITY OF WASHINGTON · PI CURTIS, J RANDALL, ENGELBERG, RUTH ANN · 1999 to 2012
$6.7M
NINR NIH HHS R01 NR005226
6 · The paper itself

Abstract

contextFamily members of critically ill patients who participate in research focused on palliative care issues have been found to be systematically different from those who do not. These differences threaten the validity of research and raise ethical questions about worsening disparities in care by failing to represent diverse perspectives.

objectivesThis study's aims were to explore: 1) barriers and facilitators influencing family members' decisions to participate in palliative care research; and 2) potential methods to enhance research participation.

methodsFamily members who were asked to participate in a randomized trial testing the efficacy of a facilitator to improve clinician-family communication in the intensive care unit (ICU). Family members who participated (n = 17) and those who declined participation (n = 7) in Family Communication Study were interviewed about their recruitment experiences. We also included family members of currently critically ill patients to assess current experiences (n = 4). Interviews were audio-recorded and transcribed. Investigators used thematic analysis to identify factors influencing family members' decisions. Transcripts were co-reviewed to synthesize codes and themes.

resultsThree factors influencing participants' decisions were identified: Altruism, Research Experience, and Enhanced Resources. Altruism and Research Experience described intrinsic characteristics that are less amenable to strategies for improving participation rates. Enhanced Resources reflects families' desires for increased access to information and logistical and emotional support.

conclusionFamily members found their recruitment experiences to be positive when staff were knowledgeable about the ICU, sensitive to the stressful circumstances, and conveyed a caring attitude. By training research staff to be supportive of families' emotional needs and need for logistical knowledge about the ICU, recruitment of a potentially more diverse sample of families may be enhanced.

Indexed as

FamilyAltruismAttitude of Health PersonnelCritical IllnessFemaleHealth CommunicationHealth PersonnelHumansIntensive Care UnitsInterviews as TopicMaleMiddle AgedPalliative CarePatient ParticipationProfessional-Family RelationsQualitative ResearchCritical careethicspalliative carequalitative methodsresearch recruitment

Identifiers

PMID28438584
PMCPMC5557665

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.