Evidence map›Paper›PMID 28435422›Full record

ArticleInternational journal of integrated care2016

Development and Validation of an Instrument for Assessing Patient Experience of Chronic Illness Care.

José Joaquín Mira, Roberto Nuño-Solinís, Mercedes Guilabert-Mora, Olga Solas-Gaspar, Paloma Fernández-Cano, Maria Asunción González-Mestre, Joan Carlos Contel, Marío Del Río-Cámara

3 registry-linked trialsAbstract read
In one paragraph

Article in International journal of integrated care, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 3 registered trials, which are not on this map. Cited by 45 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
45citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03285659 naunknown statusnot on this mapstarted 2018, after this paper: background citation

Study Protocol: Development and Assessment of an Active Strategy for the Implementation of a Collaborative Care Approach for Depression in Primary Care. The INDI·i Project

TypeinterventionalSponsorFundacio d'Investigacio en Atencio Primaria Jordi Gol i GurinaRan2018 to 2019Enrolled44ConditionsDepressionArmsIntervention: INDI Implementation
NCT04048980 naunknown statusnot on this mapstarted 2018, after this paper: background citation

Care of Older People With Cognitive Impairment or Dementia Hospitalized in Traumatology Units

TypeinterventionalSponsorHospital Clinic of BarcelonaRan2018 to 2020Enrolled432ConditionsDementia, Femur Fracture, Continuity of Patient CareArmsCARExDEM
NCT04592263 completednot on this mapstarted 2019, after this paper: background citation

Patient Centered Care in Diabetes in Ecuador: Mixed-methods Study.

TypeobservationalSponsorUniversidad Miguel Hernandez de ElcheRan2019 to 2021Enrolled524ConditionsPatient Satisfaction, Patient Engagement, Patient Empowerment, Health LiteracyArmsEPD Questionnaire
3 · Its place in the literature

Who cites it

45 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Review
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  5. Development and Validation of a Culturally Adapted Patient-Reported Experience Measure for Diabetes Care in Thailand: Mixed-Methods Study.Health expectations : an international journal of public participation in health care and health policy · 2026
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  6. Article
  7. Article
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  9. Patient experience with pulmonary hypertension in Spain.Orphanet journal of rare diseases · 2025
    Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

José Joaquín MiraClinical psychologist in Alicante-Sant Joan d'Alacant Health District, Consellería de Sanidad, Alicante, Professor, Miguel Hernández University, Elche, Alicante, REDISECC, Red de Servicios de Salud Orientados a Enfermedades Crónicas, Spain.
Roberto Nuño-SolinísHead of Innovation at Deusto Business School Health, University of Deusto, Bilbao, Spain.
Mercedes Guilabert-MoraDepartment of Health Psychology Miguel Hernández University, Elche, Alicante, Spain.
Olga Solas-GasparInternational consultant on Health Policy and Management and associated researcher in NewHealth Foundation, Spain.
Paloma Fernández-CanoPublic Policy at Merck Sharp & Dohme España (MSD), Madrid, Spain.
Maria Asunción González-MestreHead Expert Patient Programme Catalonia™, Chronic Care Programme, General Directorate of Health Planning, Barcelona, Spain.
Joan Carlos ContelChronic Care Programme, Department of Health, Barcelona, Spain.
Marío Del Río-CámaraBIOEF, Basque Institute for Health Care Research and Innovation, Spain.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionThe experience of chronic patients with the care they receive, fuelled by the focus on patient-centeredness and the increasing evidence on its positive relation with other dimensions of quality, is being acknowledged as a key element in improving the quality of care. There are a dearth of accepted tools and metrics to assess patient experience from the patient's perspective that have been adapted to the new chronic care context: continued, systemic, with multidisciplinary teams and new technologies.

methodsDevelopment and validation of a scale conducting a literature review, expert panel, pilot and field studies with 356 chronic primary care patients, to assess content and face validities and reliability.

resultsIEXPAC is an 11+1 item scale with adequate metric properties measured by Alpha Chronbach, Goodness of fit index, and satisfactory convergence validity around three factors named: productive interactions, new relational model and person's self-management.

conclusionsIEXPAC allows measurement of the patient experience of chronic illness care. Together with other indicators, IEXPAC can determine the quality of care provided according to the Triple Aim framework, facilitating health systems reorientation towards integrated patient-centred care.

Indexed as

chronic illnessintegrated caremeasurementpatient-centred carepatient engagement

Identifiers

PMID28435422
PMCPMC5350641

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.