ArticleInternational journal of integrated care2016
"You Never Know What Happens Next" - Young Adult Service Users' Experience with Mental Health Care and Treatment through One Year.
Article in International journal of integrated care, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
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Who cites it
11 citing papers in PubMed.
- Transitions from child to adult mental health care: the evidence-base for ESCAP guidance for clinicians.European child & adolescent psychiatry · 2026Article
- Rethinking mental healthcare: operationalising intersectionality through a community-driven social clinic model.Journal of global health · 2025Article
- Struggling to be heard: A scoping review of user participation in ADHD mental healthcare for children and adolescents.Scandinavian journal of child and adolescent psychiatry and psychology · 2025Review
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- Patient experiences with depression care in general practice: a qualitative questionnaire study.Scandinavian journal of primary health care · 2022Article
- Flexible assertive community treatment teams can change complex and fragmented service systems: experiences of service providers.International journal of mental health systems · 2021Article
- "I'm just a long history of people rejecting referrals" experiences of young people who fell through the gap between child and adult mental health services.European child & adolescent psychiatry · 2021Article
- Coordination of services for dual diagnosis clients in the interface between specialist and community care.Journal of multidisciplinary healthcare · 2018Article
- Challenges in Achieving Collaboration in Clinical Practice: The Case of Norwegian Health Care.International journal of integrated care · 2016Article
- Integration of Care in Complex and Fragmented Service Systems: Experiences of Staff in Flexible Assertive Community Treatment Teams.International journal of integrated careArticle
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Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Fragmented services are a well-known problem in the mental health sector. Mental health service users' experiences of treatment and care can provide knowledge for developing more user-oriented continuity of care. We followed nine young adults with mental health illnesses and complex needs, conducting four interviews with each informant in the course of a year. The aim was to capture their experiences and views about treatment and care, focusing on (dis)continuities and episodes occurring through that year. The users' experiences were affected by shifts and transitions between institutions, units and practitioners while their need was predictability and stability. A good and stable patient-provider relationship was considered highly useful but difficult to establish. The participants had a strong desire for explanation, adequate treatment and progress, but very different perceptions of the usefulness of diagnoses. Some felt rejected when they tried to tell the therapist about their trauma. Lack of user-involvement characterized many of the participants' stories while they desired to become more engaged and included in important decisions concerning treatment and medication. The participants' experiences stand in contrast to key policy goals of coherent mental health services. The article discusses what may explain the gap between policy and reality, and how continuity of care may be improved.
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