ArticlePatient preference and adherence2017
Complexity of care and strategies of self-management in patients with colorectal cancer.
Article in Patient preference and adherence, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
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Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Treatment burden in individuals living with and beyond cancer: A systematic review of qualitative literature.PloS one · 2023Pooled it
- Quality of life and symptom burden after rectal cancer surgery: a randomised controlled trial comparing patient-led versus standard follow-up.Journal of cancer survivorship : research and practice · 2024Trial
- Caregiving Experiences, Supportive Care Needs and Coping Strategies Among Family Caregivers of Patients with Colorectal Cancer in Kazakhstan: A Qualitative Descriptive Study.Nursing reports (Pavia, Italy) · 2026Article
- Oncology nursing supporting cancer survivorship from diagnosis to discharge: A case exemplar.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2025Article
- [Cross-sectoral care trajectories of patients with colorectal cancer in Saxony-Anhalt].Gesundheitswesen (Bundesverband der Arzte des Offentlichen Gesundheitsdienstes (Germany)) · 2024Article
- Association Between Racial and Socioeconomic Disparities and Hospital Performance in Treatment and Outcomes for Patients with Colon Cancer.Annals of surgical oncology · 2024Article
- Influencing factors of self-management behavior in cancer patients based on a theoretical domain framework.Zhejiang da xue xue bao. Yi xue ban = Journal of Zhejiang University. Medical sciences · 2023Article
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- Predictors of prostate cancer survivors' engagement in self-management behaviors.Canadian Urological Association journal = Journal de l'Association des urologues du Canada · 2023Article
- The impact of peripheral neuropathy symptoms, self-care ability, and disturbances to daily life on quality of life among gynecological cancer patients undergoing chemotherapy: a cross-sectional survey.Korean journal of women health nursing · 2022Article
- Responsive social support serves important functions in clinical communication: Translating perspectives from relationship science to improve cancer clinical interactions.Social science & medicine (1982) · 2022Article
- Tackling the clinical complexity of breast cancer.Drugs in context · 2022Article
- Health professionals' perceptions of colorectal cancer patients' treatment burden and their supportive work to ameliorate the burden - a qualitative study.BMC health services research · 2020Article
- An Evaluation of the Effect of Pharmacist-Led Comprehensive Chemotherapy Consultation Services on Outpatient Appointment Adherence.Journal of managed care & specialty pharmacy · 2020Article
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Corrections and comments
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeGiven the inherent complexity of cancer care, in which personal, social, and clinical aspects accumulate and interact over time, self-management support need to become more comprehensive. This study has the following two aims: 1) to analyze and describe the complexity of individual patient situations and 2) to analyze and describe already established self-management strategies of patients to handle this complexity.
methodsA qualitative study was conducted. Ten focus groups were performed collecting perspectives of the following three user groups: patients with colorectal cancer (n=12) and representatives from support groups (n=2), physicians (n=17), and other health care professionals (HCPs; n=16). Data were analyzed using qualitative content analysis.
resultsThe results showed that cancer patients are struggling with the complexity of their individual situations characterized by the 1) "complexity of disease", 2) "complexity of care", and 3) "complexity of treatment-related data". To deal with these multifaceted situations, patients have established several individual strategies. These strategies are "proactive demanding" (eg, to get support and guidance or a meaningful dialog with the doctor), "proactive behavior" (eg, preparation of visits), and "proactive data management" (eg, in terms of merging treatment-related data and to disseminate these to their health care providers).
conclusionPatients with colorectal cancer have to handle a high complexity of individual situations within treatment and care of their disease. Private and social challenges have a culminating effect. This complexity increases as patients experience a longer duration of treatment and follow-up as patients have to handle a significantly higher amount of data over time. Self-management support should focus more on the individual complexity in a patient's life. This includes assisting patients with strategies that have already been established by themselves (like preparation of visits).
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