ArticleInternational journal of mental health systems2017
Service user and care giver involvement in mental health system strengthening in Nepal: a qualitative study on barriers and facilitating factors.
Article in International journal of mental health systems, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 33 papers, 1 of them a synthesis that pooled it.
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Who cites it
33 citing papers in PubMed, 1 synthesis or guideline pooled it, 63 citations in OpenAlex.
- Consumers' and health providers' views and perceptions of partnering to improve health services design, delivery and evaluation: a co-produced qualitative evidence synthesis.The Cochrane database of systematic reviews · 2023Pooled it
- Treatment Preferences for Pharmacological versus Psychological Interventions among Primary Care Providers in Nepal: Mixed Methods Analysis of a Pilot Cluster Randomized Controlled Trial.International journal of environmental research and public health · 2022Trial
- Exploring barriers and facilitators of mental health care in Sudurpaschim Province, Nepal: a socioecological qualitative study of patients with depression and anxiety and health care professionals.BMC health services research · 2025Article
- Feasibility and Applicability of Implementing the Framework for Comprehensive Understanding of Structural Stigma in Mental Healthcare Systems: A Case Example of Nepal.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Family caregiving as a pathway to strengthen health outcomes in India.Frontiers in public health · 2025Article
- Rationalizing the Influence of Co-Design on Distress, Clinical Decision-Making and Disease Self-Management of Cancer Patients-as-Partners: A Quasi-Experimental Study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- An analysis of Nepal's Draft Mental Health Acts 2006-2017: competing values and power.Health policy and planning · 2024Article
- Patient engagement in the development and delivery of healthcare services: a systematic scoping review.BMJ open quality · 2023Article
- The PhotoVoice method for collaborating with people with lived experience of mental health conditions to strengthen mental health services.Global mental health (Cambridge, England) · 2023Article
- The challenge of ensuring elderly people can access their health insurance entitlements: a mixed methods study on the Republic of Srpska's Protector of Patients' Health Insurance Entitlements.BMJ global health · 2022Article
- National Mental Health Policy, India (2014): Where Have We Reached?Indian journal of psychological medicine · 2022Article
- Crying baby gets the milk? The governmentality of grievance redressal for patient rights violations in Karnataka, India.BMJ global health · 2022Article
- Stigma against mental health disorders in Nepal conceptualised with a 'what matters most' framework: a scoping review.Epidemiology and psychiatric sciences · 2022Article
- Towards comprehensive mental health care: experiences and challenges of psychosocial care in Brazil.BMC public health · 2021Article
- Article
- Exploring the potential use of patient and public involvement to strengthen Indonesian mental health care for people with psychosis: A qualitative exploration of the views of service users and carers.Health expectations : an international journal of public participation in health care and health policy · 2020Article
- Reducing mental illness stigma in healthcare settings: Proof of concept for a social contact intervention to address what matters most for primary care providers.Social science & medicine (1982) · 2020Article
- Service user and family participation in mental health policy making in Timor-Leste: a qualitative study with multiple stakeholders.BMC psychiatry · 2020Article
- Communities, health-care organizations and the contingencies and contradictions of engagement: A case study from Chile.Health expectations : an international journal of public participation in health care and health policy · 2020Article
- Making consultation meaningful: Insights from a case study of the South African mental health policy consultation process.PloS one · 2020Article
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Authors and funding
6 authors at 3 institutions in 4 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundService user and caregiver involvement has become an increasingly common strategy to enhance mental health outcomes, and has been incorporated in the mental healthpolicies of many developed nations. However, this practice is non-existent or fragmented in low and middle income countries (LMICs). Instances of service user and caregiver involvement have been rising slowly in a few LMICs, but are rarely described in the literature. Very little is known about the context of user and caregiver participation in mental health system strengthening processes in a low-income, disaster- and conflict-affected state such as Nepal.
methodsThis study explores (a) the extent and experiences of service user and caregiver involvement in policy making, service planning, monitoring, and research in Nepal; (b) perceived barriers to such involvement; and (c) possible strategies to overcome barriers. Key Informant Interviews (n = 24) were conducted with service users and caregivers who were either affiliated to a mental health organization or receiving menta health care integrated within primary care. Purposive sampling was employed. Data collection was carried out in 2014 in Chitwan and Kathmandu districts of Nepal. Data analysis was carried out in NVivo10 using a framework approach.
resultsThe involvement of service users affiliated to mental health organizations in policy development was reported to be 'tokenistic'. Involvement of caregivers was non-existent. Perceived barriers to greater involvement included lack of awareness, stigma and discrimination, poor economic conditions, the centralized health system, and lack of strong leadership and unity among user organizations. Increased focus on reducing public as well as self-stigma, improved policy frameworks and initiatives, and decentralization of care are some strategies that may facilitate service user and caregiver involvement.
conclusionThe study highlighted need for user and caregiver networks free from competing interests and priorities. Improved policy frameworks and decentralization of care may support meaningful service user and caregiver involvement.
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