ArticleJournal of the American Geriatrics Society2017
Family and Other Unpaid Caregivers and Older Adults with and without Dementia and Disability.
Article in Journal of the American Geriatrics Society, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. It is linked to trial NCT05217004 (Systematic Evaluation of Mobile Applications for Informal Caregivers of People Living With Dementia), which is not on this map. Cited by 133 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Systematic Evaluation of Mobile Applications for Informal Caregivers of People Living With Dementia
Who cites it
133 citing papers in PubMed, 4 syntheses or guidelines pooled it, 203 citations in OpenAlex.
- Effective Solutions for Caregivers of Older Adults: A Review of Systematic Reviews.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025Pooled it
- Exploring concepts and trends in informal caregiver burden: systematic review using citation network and content analysis.Aging clinical and experimental research · 2023Pooled it
- Systematic Review of Exercise for Caregiver-Care Recipient Dyads: What Is Best for Spousal Caregivers-Exercising Together or Not at All?The Gerontologist · 2021Pooled it
- Health Care-Related Tasks of Informal Dementia Caregivers in the U.S.: A Systematic Review with Narrative Synthesis.Inquiry : a journal of medical care organization, provision and financingPooled it
- A Mobile Self-Assessment and Referral Platform for Family Caregivers of Individuals With Alzheimer Disease and Related Dementias: Protocol for a Pilot Randomized Controlled Trial.JMIR research protocols · 2026Trial
- The pain identification and communication toolkit: a training program to support family caregivers of persons with ADRD.BMC geriatrics · 2025Trial
- Trial
- Mobile App Psychoeducation for Dementia Caregivers In Vietnam: A Randomized Controlled Trial.Journal of multidisciplinary healthcare · 2025Trial
- Trial
- Peer support groups and care burden in hemodialysis caregivers: a RCT in an Iranian healthcare setting.BMC nephrology · 2024Trial
- Dementia Family Caregivers' Involvement and Perceived Challenges in Health Care Interactions: Informing the GUIDE Model.Journal of general internal medicine · 2026Observational
- Study protocol for a pilot randomized controlled trial of SONATA: A social network intervention for older adults with advanced cancer.Journal of geriatric oncology · 2026Article
- Financial strain contributes to daily depressive and anxiety symptoms in Hispanic and Latino family caregivers of people living with dementia: A daily diary study.Alzheimer's & dementia. Behavior & socioeconomics of aging · 2026Article
- Care Partner Perspectives on Hypertension Management in Alzheimer Disease and Related Dementias in an Online Forum: Qualitative Thematic Analysis.JMIR nursing · 2026Article
- Caregiver Neglect in Older Adults With Cognitive Impairment: Characteristics and Themes From a Large Registry of Cases.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026Article
- Friend Caregivers Among Older Adults.JAMA network open · 2026Article
- Content, timing, participants and documented outcomes of family meetings in a specialist palliative care unit in Portugal: a retrospective descriptive study.BMC palliative care · 2026Article
- Use of Personal and Social Resourcefulness by Adult-Child and Spousal Caregivers of Persons with Dementia.International journal of aging & human development · 2026Article
- Health Patterns of Dementia Caregivers With Chronic Pain: Latent Profile Analysis of the PROMIS-29 Measure.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026Article
- Multicomponent School of Caring Program to Support Caregivers of Patients With Dementia: A Quasi-Experimental Effectiveness Study in Primary Care.Annals of family medicine · 2026Article
73 more citing papers are in PubMed but not listed here.
Corrections and comments
- Erratum issuedErratum.2017
Authors and funding
4 authors at 2 institutions in 1 country.
Funding
Abstract
objectivesTo estimate the number of caregivers providing assistance to community-dwelling older persons with and without dementia and with or without substantial disability; to describe the characteristics of caregivers and care recipients in these groups; to characterize the health-related tasks that caregivers provide; and to estimate associations between the numbers of tasks and caregiver burden.
designNationally representative surveys of caregivers and older adults in the United States.
setting2011 National Health and Aging Trends Study and National Study of Caregiving.
participantsCommunity-dwelling older adults and their family caregivers, who were selected on the basis of having assisted with mobility, self-care, household activities, transportation, or medical tasks. MEASUREMENTS: Caregiver burden (emotional, physical, financial difficulties) and restrictions on social participation.
resultsAlthough much larger proportions of older adults with dementia and disability (98.4%, n = 1.0 million) and dementia but not disability (95.5%, n = 1.3 million) received caregiving assistance, the largest absolute number of individuals receiving assistance were older adults without dementia or disability (4.0 million). Within each caregiver group, caregivers provided assistance with at least one task across domains of activity of daily living and instrumental activity of daily living-related assistance (>98%), health systems logistics (>70%), and health management (>50%). There was a significant linear association between number of tasks provided and risk of burden in virtually all caregiver groups and domains of assistance.
conclusionCaregivers of care recipients without dementia or disability accounted for the largest absolute number of helpers. These caregivers, similar to caregivers of care recipients with dementia or disability, delivered a broad spectrum of health-related tasks and experienced caregiver burden and restrictions on social participation. Findings support the need for interventions that address the needs of caregivers who have not typically been defined as high risk.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.