ArticleJournal of empirical research on human research ethics : JERHRE2017
Children's Decision-Making Involvement About Research Participation: Associations With Perceived Fairness and Self-Efficacy.
Article in Journal of empirical research on human research ethics : JERHRE, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
23 citing papers in PubMed.
- Journal of child health care : for professionals working with children in the hospital and community · 2022Trial
- Development of Let's Get REAL: A Family Intervention for Pediatric Stem Cell Transplant and Cellular Therapy Decisions.Psycho-oncology · 2026Article
- Correlates of youth involvement in decision making about growth hormone treatment.Families, systems & health : the journal of collaborative family healthcare · 2025Article
- Barriers and Facilitators to Youth Decision-Making Involvement in Families Referred for Stem Cell Transplant.Journal of family nursing · 2024Article
- Genomic sequencing research in pediatric cancer care: Decision making, attitudes, and perceived utility among adolescents and young adults and their parents.Genetics in medicine : official journal of the American College of Medical Genetics · 2024Article
- Article
- Parents' decision-making regarding whether to receive adult-onset only genetic findings for their children: Findings from the BabySeq Project.Genetics in medicine : official journal of the American College of Medical Genetics · 2023Article
- How do we best engage young people in decision-making about their health? A scoping review of deliberative priority setting methods.International journal for equity in health · 2023Article
- Perceptions of Youth and Parent Decision-Making Roles Regarding Recombinant Human Growth Hormone Treatment.Endocrines · 2022Article
- The importance of applying the statement of assent to children and adolescents: a qualitative study.Investigacion y educacion en enfermeria · 2022Article
- Extending UTAUT with national identity and fairness to understand user adoption of DCEP in China.Scientific reports · 2022Article
- Paediatric biobanking for health: The ethical, legal, and societal landscape.Frontiers in public health · 2022Review
- Inclusion under the Mental Capacity Act (2005): A review of research policy guidance and governance structures in England and Wales.Health expectations : an international journal of public participation in health care and health policy · 2021Review
- Using extended complexity theory to test SMEs' adoption of Blockchain-based loan system.PloS one · 2021Article
- Understanding the child-doctor relationship in research participation: a qualitative study.BMC pediatrics · 2020Article
- Researching the Experiences of Children with Cancer: Considerations for Practice.Children (Basel, Switzerland) · 2019Review
- Decision-Making Involvement and Prediction of Adherence in Youth With Type 1 Diabetes: A Cohort Sequential Study.Journal of pediatric psychology · 2019Article
- Adolescent-Parent Dyadic Retention in an Interview Study and Changes in Willingness to Participate in a Hypothetical Microbicide Safety Study.Journal of pediatric and adolescent gynecology · 2018Article
- Involving Youth With a Chronic Illness in Decision-making: Highlighting the Role of Providers.Pediatrics · 2018Article
- Adolescent and Parental Attitudes About Return of Genomic Research Results: Focus Group Findings Regarding Decisional Preferences.Journal of empirical research on human research ethics : JERHRE · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
Abstract
The primary objective of this study was to examine the associations of children's involvement in decisions about research participation with their perceptions of the decision-making process and self-efficacy. Participants were children (ages 8-17) who enrolled in research studies in the prior 2 months. Children completed a questionnaire that yielded three decision-making involvement subscales: Researcher Engages Child, Researcher Supports Autonomy, and Child Participates. Children reported on fairness of the decision-making process and health-related decision self-efficacy. After adjusting for age, higher scores on Researcher Engages Child were associated with greater self-efficacy, and higher scores on Researcher Supports Autonomy were associated with greater perceived fairness. These data underscore the potential importance of researcher-child interactions about research participation when assent is sought, including proactively involving children in the decision by asking for their opinions and communicating their central role in the decision, which are likely to be more meaningful to children than receiving information or signing a form.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.