Trial reportBMJ open2017
Person-centred transition programme to empower adolescents with congenital heart disease in the transition to adulthood: a study protocol for a hybrid randomised controlled trial (STEPSTONES project).
Trial report in BMJ open, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 3 registered trials, which are not on this map. Cited by 31 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Effectiveness of a Transition Program to Empower Adolescents With Congenital Heart Disease in the Transition to Adulthood: the STEPSTONES Project
Effectiveness of a Person-Centred Transition Program to Empower Adolescents With Type 1 Diabetes in the Transition to Adulthood: the STEPSTONES-DIAB Project
Evaluation of the Digital Delivery of Person-centered Transitional Care to Empower Adolescents With Chronic Childhood-onset Diseases: The Digi-STEPSTONES Study
Who cites it
31 citing papers in PubMed, 3 syntheses or guidelines pooled it, 77 citations in OpenAlex.
- Using consumer engagement strategies to improve healthcare safety for young people: An exploration of the relevance and suitability of current approaches.Health expectations : an international journal of public participation in health care and health policy · 2022Pooled it
- Discontinuity of Cardiac Follow-Up in Young People With Congenital Heart Disease Transitioning to Adulthood: A Systematic Review and Meta-Analysis.Journal of the American Heart Association · 2021Pooled it
- Children's experiences of congenital heart disease: a systematic review of qualitative studies.European journal of pediatrics · 2018Pooled it
- Implementation fidelity of a transition program for adolescents with congenital heart disease: the STEPSTONES project.BMC health services research · 2022Trial
- Mechanisms of impact and experiences of a person-centred transition programme for adolescents with CHD: the Stepstones project.BMC health services research · 2021Trial
- Genetic Health Education in Adolescents with Congenital Heart Disease: A Patient, Parent, and Clinician Perspective.Pediatric cardiology · 2026Article
- Self-Care Behaviors and Its Associated Factors in Adult Congenital Heart Disease: A Cross-Sectional Study.Journal of cardiovascular development and disease · 2026Article
- Bridging Pediatric to Adult Care: A Scoping Review on Transitional Care for Individuals with Congenital Heart Disease Using Data Mining Techniques to Identify Key Topics.Current cardiology reports · 2026Article
- Transition from Paediatric to Adult Care in Congenital Heart Disease: A Call for Action.Journal of clinical medicine · 2025Review
- Stakeholder perspectives on implementing person-centered transitional care in congenital heart disease: the STEPSTONES-Implement project.BMC health services research · 2025Article
- Evaluation of person-centred care within the Stepstones transition program for adolescents with congenital heart disease - a document analysis.International journal of nursing studies advances · 2025Article
- Resource utilization and costs of transitioning from pediatric to adult care for patients with chronic autoinflammatory and autoimmune disorders.Pediatric rheumatology online journal · 2024Article
- Resource use and costs of transitioning from pediatric to adult care for patients with chronic kidney disease.Pediatric nephrology (Berlin, Germany) · 2024Article
- Preferences for disease-related information and transitional skills among adolescents with congenital heart disease in the early transitional stage.European journal of pediatrics · 2023Article
- Transition for adolescents with a rare disease: results of a nationwide German project.Orphanet journal of rare diseases · 2023Article
- Strategies to Aid Successful Transition of Adolescents with Congenital Heart Disease: A Systematic Review.Children (Basel, Switzerland) · 2023Review
- Advances in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: A Practical Approach to Transition Program Design: A Scientific Statement From the American Heart Association.Journal of the American Heart Association · 2022Review
- The longitudinal association between patient empowerment and patient-reported outcomes: What is the direction of effect?PloS one · 2022Observational
- Understanding of the transition to adult healthcare services among individuals with VACTERL association in Sweden: A qualitative study.PloS one · 2022Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 2 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionWhen a young person grows up, they evolve from an independent child to an empowered adult. If an individual has a chronic condition, this additional burden may hamper adequate development and independence. Transition programmes for young persons with chronic disorders aim to provide the necessary skills for self-management and participation in care. However, strong evidence on the effects of these interventions is lacking. Therefore, as part of the STEPSTONES project (Swedish Transition Effects Project Supporting Teenagers with chrONic mEdical conditionS), we propose a trial to assess the effectiveness of a structured, person-centred transition programme to empower adolescents with congenital heart disease in the transition to adulthood. METHODS/
designSTEPSTONES will use a hybrid experimental design in which a randomised controlled trial is embedded in a longitudinal, observational study. It will be conducted in 4 paediatric cardiology centres in Sweden. 2 centres will be allocated to the randomised controlled trial group, assigning patients randomly to the intervention group (n=63) or the comparison group (n=63). The other 2 centres will form the intervention-naïve control group (n=63). The primary outcome is the level of patient empowerment, as measured by the Gothenburg Young Persons Empowerment Scale (GYPES). ETHICS AND DISSEMINATION: The study has been approved by the Regional Ethical Board of Gothenburg, Sweden. Findings will be reported following the CONSORT statement and disseminated at international conferences and as published papers in peer-reviewed journals. TRIAL REGISTRATION NUMBER: NCT02675361; pre-results.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.