SynthesisBMC geriatrics2017
How to explore the needs of informal caregivers of individuals with cognitive impairment in Alzheimer's disease or related diseases? A systematic review of quantitative and qualitative studies.
Synthesis in BMC geriatrics, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 31 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
31 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Effective Solutions for Caregivers of Older Adults: A Review of Systematic Reviews.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025Pooled it
- The needs and unmet needs for people living with dementia, caregivers and care workers in dementia health care systems: a systematic review.Frontiers in public health · 2025Pooled it
- Retracted: Internet-Based Supportive Interventions for Family Caregivers of People With Dementia: Systematic Review and Meta-Analysis.Journal of medical Internet research · 2020Pooled it
- Reliability, validity and relevance of needs assessment instruments for informal dementia caregivers: a psychometric systematic review.JBI evidence synthesis · 2020Pooled it
- Effects of the Digital App "Support, Monitoring and Reminder Technology for Mild Dementia" (SMART4MD) on People With Mild Cognitive Impairment and Their Informal Caregivers: 18-Month Multicenter Pragmatic Randomized Controlled Trial.Journal of medical Internet research · 2026Trial
- Identifying Unmet Needs of Informal Dementia Caregivers in Clinical Practice: User-Centered Development of a Digital Assessment Tool.JMIR aging · 2025Trial
- Validity testing of the Benjamin Rose Unmet Need Instrument: a comprehensive measure for dementia caregiving.The Gerontologist · 2026Article
- Assessing needs and goals of dementia caregivers: development of the COPE-ING measure.BMC palliative care · 2026Article
- Measurement instruments for assessing support needs of dementia caregivers: a COSMIN-based systematic review protocol.BMJ open · 2026Article
- Perspectives and Experiences of Family Caregivers Using Supportive Mobile Apps in Dementia Care: Meta-Synthesis of Qualitative Research.JMIR mHealth and uHealth · 2025Article
- Information and education for informal dementia caregivers: the Age-it project.Frontiers in public health · 2025Article
- Programmes Addressed to Informal Caregivers' Needs: A Systematic Literature Review.Geriatrics (Basel, Switzerland) · 2024Review
- Giving voice to the voiceless: Understanding the perceived needs of dementia family carers in Soweto, a South African township.Dementia (London, England) · 2024Article
- Mental health impact of the COVID-19 pandemic on patients with neurodegenerative diseases and perceived family caregiver burden in Lima, Peru.Brain and behavior · 2024Article
- Reply to: "Unmet supportive care needs among informal caregivers of patients with head and neck cancer in the first 2 years after diagnosis and treatment".Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Article
- Dynamics of Interaction among Professionals, Informal Supporters, and Family Caregivers of People with Dementia along the Dementia Care Pathway: A Nationwide Survey in Japan.International journal of environmental research and public health · 2023Article
- Measuring the needs of dementia patients' caregivers: An assessment study from King Abdul-Aziz Medical City, Jeddah, Saudi Arabia.F1000Research · 2023Article
- Barriers and facilitators of using dementia community support services provided by an Alzheimers organisation: Perceptions of informal caregivers receiving services.Health & social care in the community · 2022Article
- A systematic review of systematic reviews of needs of family caregivers of older adults with dementia.European journal of ageing · 2022Review
- Programs Addressed to Family Caregivers/Informal Caregivers Needs: Systematic Review Protocol.Journal of personalized medicine · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThis study aims to review the methodologies used to identify the needs, the existing needs assessment instruments and the main topics of needs explored among caregivers of patients with mild cognitive impairment to dementia.
methodsMEDLINE, PsycINFO, The Cochrane Library and Web of science were searched from January 1980 to January 2017. Research studies in English or French were eligible for inclusion if they fulfilled the following criteria: quantitative, qualitative and mixed method studies that used instrument, focus group or semi-structured interviews to assess the informal caregiver's needs in terms of information, coping skills, support and service.
resultsSeventy studies (n = 39 quantitative studies, n = 25 qualitative studies and n = 6 mixed method studies) met the inclusion criteria and were included. Thirty-six quantitative instruments were identified but only one has been validated for the needs assessment of dementia caregivers: the Carer's Needs Assessment for Dementia (CNA-D). The main areas of needs explored in these instruments were: information, psychosocial, social, psychoeducational and other needs.
conclusionsNo instrument has been developed and validated to assess the needs of informal caregivers of patients with cognitive impairment, whatever the stage and the etiology of the disease. As the perceived needs of caregivers may evolve with the progression of the disease and the dementia transition, their needs should be regularly assessed.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.