ReviewAnnual review of genomics and human genetics2017
Sharing Data to Build a Medical Information Commons: From Bermuda to the Global Alliance.
Review in Annual review of genomics and human genetics, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
15 citing papers in PubMed, 56 citations in OpenAlex.
- Governance of cross-border genomic data sharing through a human rights approach.Nature genetics · 2025Review
- The BRAIN Initiative data-sharing ecosystem: Characteristics, challenges, benefits, and opportunities.eLife · 2024Article
- Data access arrangements in genomic research consortia.Scientific reports · 2024Review
- The interplay of ethics and genetic technologies in balancing the social valuation of the human genome in UNESCO declarations.European journal of human genetics : EJHG · 2024Article
- Ethical and social reflections on the proposed European Health Data Space.European journal of human genetics : EJHG · 2024Article
- Cross-border data sharing for research in Africa: An analysis of the data protection and research ethics requirements in 12 jurisdictions.Research square · 2024Article
- The human genome as the common heritage of humanity.Frontiers in genetics · 2023Article
- Darwinian genomics and diversity in the tree of life.Proceedings of the National Academy of Sciences of the United States of America · 2022Article
- Digital Technologies and Data Science as Health Enablers: An Outline of Appealing Promises and Compelling Ethical, Legal, and Social Challenges.Frontiers in medicine · 2021Review
- The Brazilian Initiative on Precision Medicine (BIPMed): fostering genomic data-sharing of underrepresented populations.NPJ genomic medicine · 2020Article
- Genomics and data science: an application within an umbrella.Genome biology · 2019Review
- Genomic variant sharing: a position statement.Wellcome open research · 2019Article
- The Bermuda Triangle: The Pragmatics, Policies, and Principles for Data Sharing in the History of the Human Genome Project.Journal of the history of biology · 2018Article
- The Omics Revolution Continues: The Maturation of High-Throughput Biological Data Sources.Yearbook of medical informatics · 2018Review
- Creating a data resource: what will it take to build a medical information commons?Genome medicine · 2017Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 3 institutions in 2 countries.
Funding
Abstract
The Human Genome Project modeled its open science ethos on nematode biology, most famously through daily release of DNA sequence data based on the 1996 Bermuda Principles. That open science philosophy persists, but daily, unfettered release of data has had to adapt to constraints occasioned by the use of data from individual people, broader use of data not only by scientists but also by clinicians and individuals, the global reach of genomic applications and diverse national privacy and research ethics laws, and the rising prominence of a diverse commercial genomics sector. The Global Alliance for Genomics and Health was established to enable the data sharing that is essential for making meaning of genomic variation. Data-sharing policies and practices will continue to evolve as researchers, health professionals, and individuals strive to construct a global medical and scientific information commons.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.