ArticleThe patient2017
Views of the UK General Public on Important Aspects of Health Not Captured by EQ-5D.
Article in The patient, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
25 citing papers in PubMed, 1 synthesis or guideline pooled it.
- A qualitative systematic review of the impact of hearing on quality of life.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Pooled it
- Moving beyond global scores: the added value of clinical dimensions for assessing HRQoL in mental disorders.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Article
- Psychometric benefits of adding bolt-ons to the EQ-5D-5L in populations undergoing minimally invasive cosmetic procedures.The European journal of health economics : HEPAC : health economics in prevention and care · 2025Article
- POPUP: an observational digital study reporting general population norms for the EQ-5D-5-L and HUI-3 in 8 countries.Archives of public health = Archives belges de sante publique · 2025Article
- Validation of the cancer-specific utility measure EORTC QLU-C10D using evidence from four lung cancer trials covering six country value sets.Scientific reports · 2025Article
- Comparing Generic Paediatric Health-Related Quality-of-Life Instruments: A Dimensionality Assessment Using Factor Analysis.PharmacoEconomics · 2024Article
- Exploring potential EQ-5D bolt-on dimensions with a qualitative approach: an interview study in Hong Kong SAR, China.Health and quality of life outcomes · 2024Article
- Content validity of the EQ-5D-5L with skin irritation and self-confidence bolt-ons in patients with atopic dermatitis: a qualitative think-aloud study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Article
- Comparing the psychometric properties of the EQ-5D-3L and EQ-5D-5L descriptive systems and utilities in atopic dermatitis.The European journal of health economics : HEPAC : health economics in prevention and care · 2023Article
- Criteria for developing, assessing and selecting candidate EQ-5D bolt-ons.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022Article
- A qualitative investigation of the relevance of skin irritation and self-confidence bolt-ons and their conceptual overlap with the EQ-5D in patients with psoriasis.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022Article
- The use of composite time trade-off and discrete choice experiment methods for the valuation of the Short Warwick-Edinburgh Mental Well-being Scale (SWEMWBS): a think-aloud study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022Article
- Impact of Including Carer Information in Time Trade-Off Tasks: Results from a Pilot Study.PharmacoEconomics - open · 2021Article
- Adapting preference-based utility measures to capture the impact of cancer treatment-related symptoms.The European journal of health economics : HEPAC : health economics in prevention and care · 2021Article
- The relation between EQ-5D and fatigue in a Dutch general population sample: an explorative study.Health and quality of life outcomes · 2021Article
- Acceptability of the health-related quality of life instrument EQ-5D-Y-5L among patients in child and adolescent psychiatric inpatient care.Acta paediatrica (Oslo, Norway : 1992) · 2021Article
- Utility Values for the CP-6D, a Cerebral Palsy-Specific Multi-Attribute Utility Instrument, Using a Discrete Choice Experiment.The patient · 2021Article
- Reporting and valuing one's own health: a think aloud study using EQ-5D-5L, EQ VAS and a time trade-off question among patients with a chronic condition.Health and quality of life outcomes · 2020Article
- NICE and Fair? Health Technology Assessment Policy Under the UK's National Institute for Health and Care Excellence, 1999-2018.Health care analysis : HCA : journal of health philosophy and policy · 2020Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionThe EQ-5D is a standardised instrument designed for use as a generic measure of health outcome. It was (and is) intended to provide information about a 'common core' of dimensions known to be relevant across a range of conditions; however, the five dimensions may not fully capture the health-related impacts of certain conditions. This study analyses the views of the UK general public about important aspects of health considered to be missing from the instrument.
methodsSurvey respondents were asked whether there are any aspects of health they consider to be important but are not captured by the EQ-5D, and, if so, what these aspects are. The responses (text comments) were analysed using content analysis with analyst triangulation. Data were collected from a broadly representative sample of the general public via a paper questionnaire administered as part of face-to-face interviews.
resultsData are available for 436 respondents, 179 of whom suggested aspects of health they considered important but not captured by the five EQ-5D dimensions. These were organised into 22 themes. Sensory deprivation and mental health were the health aspects most commonly mentioned by respondents.
conclusionsRespondents identified several important aspects of health that are not covered by the EQ-5D descriptive system. This study can provide the basis for more detailed qualitative and quantitative research-in particular to examine the views of different patient groups-to inform further review of the EQ-5D descriptive system. The results also have implications for the sensitivity of other generic measures.
Indexed as
Identifiers
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.