ArticleNeuropsychiatric disease and treatment2017
Access to diagnosis, treatment, and supportive services among pharmacotherapy-treated children/adolescents with ADHD in Europe: data from the Caregiver Perspective on Pediatric ADHD survey.
Article in Neuropsychiatric disease and treatment, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 2 of them syntheses that pooled it.
What it found
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Who cites it
24 citing papers in PubMed, 2 syntheses or guidelines pooled it, 52 citations in OpenAlex.
- Barriers and Enablers of Service Access and Utilization for Children and Adolescents With Attention Deficit Hyperactivity Disorder: A Systematic Review.Journal of attention disorders · 2024Pooled it
- Practitioner Review: It's time to bridge the gap - understanding the unmet needs of consumers with attention-deficit/hyperactivity disorder - a systematic review and recommendations.Journal of child psychology and psychiatry, and allied disciplines · 2023Pooled it
- The impact of a computerised test of attention and activity (QbTest) on diagnostic decision-making in children and young people with suspected attention deficit hyperactivity disorder: single-blind randomised controlled trial.Journal of child psychology and psychiatry, and allied disciplines · 2018Trial
- A Behavior Change Wheel-Based Nursing Intervention to Improve Maternal Management and Child Outcomes Among Preschool Children with Attention-Deficit/Hyperactivity Disorder.Children (Basel, Switzerland) · 2026Article
- ADHD in Children, Adolescents, and Adults: Incidence, Prevalence, and Treatment. An Analysis of Routine Health Insurance Data.Deutsches Arzteblatt international · 2026Article
- "Going Through Life on Hard Mode"-The Experience of Late Diagnosis of Autism and/or ADHD: A Qualitative Study.Autism in adulthood · 2026Article
- The Use of Novel Stimulants in ADHD Self-Medication: A Mixed Methods Analysis.Brain sciences · 2025Article
- Motor skills in children with ADHD: overlap with developmental coordination disorder.BMC psychology · 2025Article
- Process evaluation of a Structured E-parenting Support (STEPS) in the OPTIMA randomised controlled trial: a protocol.BMJ open · 2024Article
- Access to early diagnosis for attention-deficit/hyperactivity disorder among children and adolescents in Mexico City at specialized mental health services.BMC health services research · 2024Article
- Knowledge of Parents Working in Healthcare Settings Toward Attention-Deficit Hyperactivity Disorder Among Children.Journal of multidisciplinary healthcare · 2024Article
- Parent experiences of their children's diagnosis with autism, attention deficit hyperactivity disorder, or both conditions.International journal of developmental disabilities · 2024Article
- Care providers' view of the barriers in providing care for adolescents with emotional and behavioral problems.Frontiers in psychology · 2024Article
- Use of healthcare services before diagnosis of attention-deficit/hyperactivity disorder: a population-based matched case-control study.Archives of disease in childhood · 2023Article
- Immersive virtual reality for improving cognitive deficits in children with ADHD: a systematic review and meta-analysis.Virtual reality · 2023Article
- Engagement of adolescents with ADHD in a narrative-centered game-based behavior change environment to reduce alcohol use.Frontiers in education · 2023Article
- Article
- Diagnostic and Medication Treatment Disparities in African American Children with ADHD: a Literature Review.Journal of racial and ethnic health disparities · 2022Review
- Synthesising the existing evidence for non-pharmacological interventions targeting outcomes relevant to young people with ADHD in the school setting: systematic review protocol.Systematic reviews · 2022Article
- Caregiver's Perspectives on the Healthcare Experiences of Children With Behaviour-Related Disorders.Cureus · 2022Article
Corrections and comments
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Authors and funding
5 authors at 3 institutions in 4 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAttention-deficit/hyperactivity disorder (ADHD) is one of the most common childhood psychiatric disorders and negatively impacts caregivers' lives. Factors including barriers to accessing care, dissatisfaction with support services, and lack of caregiver resources may contribute to this.
objectivesTo report caregivers' experiences of ADHD diagnosis, behavioral therapy (BT), and supportive care for children/adolescents with ADHD.
methodsThe Caregiver Perspective on Pediatric ADHD (CAPPA) survey included caregivers of children/adolescents (6-17 years) from ten European countries who were currently receiving/had received ADHD pharmacotherapy in the previous 6 months. Caregivers reported experiences of obtaining an ADHD diagnosis, access to BT, availability of caregiver resources, and level of health care/school support. Pan-EU and country-specific descriptive statistics are reported; responses were compared across countries.
resultsOf 3,616 caregivers, 66% were female. Mean age of children/adolescents was 11.5 years; 80% were male. Mean time from the first doctor visit to diagnosis was 10.8 (95% confidence interval 10.2, 11.3) months; 31% of caregivers reported the greatest degrees of difficulty in obtaining an ADHD diagnosis; 44% of children/adolescents did not receive BT. Forty-seven percent of caregivers reported that sufficient resources were available, 44% were "very satisfied"/"satisfied" with medical care, and 50% found health care providers "very supportive"/"somewhat supportive". Mainstream schools were attended by 82% of children/adolescents. Of those, 67% of caregivers thought schools could help more with the child/adolescent's ADHD and 48% received extra help/special arrangement. Results varied significantly between countries (
conclusionAlmost a third of caregivers reported a high degree of difficulty in obtaining an ADHD diagnosis for their child/adolescent, less than half felt that sufficient resources were available, and gaps in support from health care providers/schools were identified. Findings underscore the need to improve access to diagnosis and provision of supportive services to enable better standards of care, and potentially reduce the impact of child/adolescent ADHD on caregivers' lives.
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