ArticleFrontiers in psychology2017
Whose Expertise Is It? Evidence for Autistic Adults as Critical Autism Experts.
Article in Frontiers in psychology, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 100 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
100 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Loneliness in autistic adults: A systematic review.Autism : the international journal of research and practice · 2022Pooled it
- 'Being Autistic is Kind of Who You Are, It's an Identity Rather than a Disorder': Identity Negotiation and Construction Among Autistic Adults Diagnosed in Later Life.Journal of autism and developmental disorders · 2026Article
- "What My Son Needs Is Me. What I Need Is... Guidance": Caregiver Perspectives About Early Autism Supports Amid Changing Attitudes and Policies.Journal of autism and developmental disorders · 2026Article
- Experiencing Independence: Perspectives from Autistic Adults.Journal of autism and developmental disorders · 2026Article
- How Educators' Self-Construal Shapes Teacher Training: Navigating from Autism Awareness to Stigma.Journal of autism and developmental disorders · 2026Article
- The neurodiversity movement vs. the medical model of autism.World psychiatry : official journal of the World Psychiatric Association (WPA) · 2026Article
- Growing-up autistic: Sharing autistic children's experiences and insights.Autism : the international journal of research and practice · 2026Article
- Good intentions are not enough: Autistic perspectives on structural ableism within the walls of our classrooms.Autism : the international journal of research and practice · 2026Article
- Autism Information Progression and the Impact of Misinformation on Autism Knowledge, Awareness and Stigmatization.Behavioral sciences (Basel, Switzerland) · 2026Article
- Effect of Autism Portrayal in Television and Film Media on Viewers With Autism.Journal of autism and developmental disorders · 2026Article
- A Pilot Randomized Controlled Trial of the Autism Mentorship Program.Journal of autism and developmental disorders · 2026Article
- Empathic Disequilibrium in Autistic Traits and CU Traits: Investigating Empathy Imbalance in Children.Research on child and adolescent psychopathology · 2026Article
- Understanding autistic identity contingencies: The chain mediation effect of autism acceptance and loneliness in ableist microaggressions and social camouflage.Autism : the international journal of research and practice · 2026Article
- What Are the Lived Experiences of Strengths in Autistic Individuals? A Systematic Review and Thematic Synthesis.Autism in adulthood · 2026Article
- Child and Caregiver Perspectives on Conversation Club Therapy: A Case Study.Journal of evaluation in clinical practice · 2025Article
- Social perception and cognition in autism.Scientific reports · 2025Article
- A qualitative study of risk and resilience for positive life outcomes in neurodivergence using the WHO ICF.Scientific reports · 2025Article
- From diagnosis to dialogue: a call for support of older adults with a late autism diagnosis.The Gerontologist · 2025Article
- Diagnostic Experiences and Barriers to Diagnosis Among Autistic Adults in the United States: Associations with Diagnostic Timing and Gender.Journal of autism and developmental disorders · 2025Article
- Autistic-led insights on airport accessibility: A retrospective analysis of environmental assessments.Autism : the international journal of research and practice · 2025Article
40 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Autistic and non-autistic adults' agreement with scientific knowledge about autism, how they define autism, and their endorsement of stigmatizing conceptions of autism has not previously been examined. Using an online survey, we assessed autism knowledge and stigma among 636 adults with varied relationships to autism, including autistic people and nuclear family members. Autistic participants exhibited more scientifically based knowledge than others. They were more likely to describe autism experientially or as a neutral difference, and more often opposed the medical model. Autistic participants and family members reported lower stigma. Greater endorsement of the importance of normalizing autistic people was associated with heightened stigma. Findings suggest that autistic adults should be considered autism experts and involved as partners in autism research.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.