ArticleBMC palliative care2017
A process evaluation of systematic risk and needs assessment for caregivers in specialised palliative care.
Article in BMC palliative care, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
13 citing papers in PubMed, 22 citations in OpenAlex.
- Building Better Website Resources: What People Diagnosed with Sarcoma and Their Carers Want to Know.Current oncology (Toronto, Ont.) · 2025Article
- Evidence adaptation and tailored implementation of family bereavement support in specialised palliative care: A multi-method study.International journal of nursing studies advances · 2025Article
- Implementation and acceptability of the Caregiver Care Model in general practice: a mixed-method feasibility study.BMC primary care · 2025Article
- What individual needs do family caregivers have in palliative home care and how are they supported? A qualitative study of a supportive intervention.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- How to support caregivers in general practice: development of the Caregiver Care Model.Palliative care and social practice · 2024Article
- Poor physical and mental health predicts prolonged grief disorder: A prospective, population-based cohort study on caregivers of patients at the end of life.Palliative medicine · 2020Article
- Article
- Describing Complexity in Palliative Home Care Through HexCom: A Cross-Sectional, Multicenter Study.Journal of multidisciplinary healthcare · 2020Article
- Article
- Current Advances in Palliative & Hospice Care: Problems and Needs of Relatives and Family Caregivers During Palliative and Hospice Care-An Overview of Current Literature.Medical sciences (Basel, Switzerland) · 2019Review
- A systematic review of the use of the electronic health record for patient identification, communication, and clinical support in palliative care.JAMIA open · 2018Article
- Assessing carer needs in chronic obstructive pulmonary disease.Chronic respiratory disease · 2018Review
- Family-Reported Outcomes Measures (FROMs) Screening Programs an Integral Part of Chronic Disease Management: A Scoping Review.Cancer control : journal of the Moffitt Cancer CenterArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundCaregiving is strenuous and it may be associated with adverse psychological outcomes. During the palliative care trajectory, there are unique opportunities for providing support and preventing poor bereavement outcome. However, the tasks of palliative care staff in relation to caregivers are often unclear in the daily practice. Assessment is recommended to establish risk and needs and standards for caregiver support are available. Still, the feasibility of applying these standards among caregivers in everyday clinical practice has not been tested so far.
methodsThis study tested the feasibility of an intervention based on key elements of the "Bereavement support standards for specialist palliative care services" in a Danish specialised palliative home care team. We followed the UK Medical Research Council's guidelines for the process evaluation of complex interventions. The intervention consisted of: 1. Systematic risk and needs assessment for caregivers at care entry; 2. Interdisciplinary conference to prepare a support plan; 3. Targeted support; 4. The establishment of an electronic medical record for caregivers to document targeted support. Outcomes included the reach, fidelity and acceptability of the intervention as well as the assessment of contextual factors.
resultsThe intervention reached 76 of 164 caregivers (46%). The interdisciplinary risk assessment and documentation of a support plan was conducted in 57 (75%) of the enrolled caregivers. Finally, a separate medical record was established according to the intervention blueprint for 62% of caregivers receiving targeted support. After managing initial challenges, palliative care staff reported that the intervention was useful and acceptable.
conclusionThe intervention proved feasible and useful. Still, we identified barriers to the implementation which should be taken into consideration when planning implementation of a systematic risk and needs assessment and in the establishment of medical records for caregivers.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.