ArticleAutism research : official journal of the International Society for Autism Research2017
Priority service needs and receipt across the lifespan for individuals with autism spectrum disorder.
Article in Autism research : official journal of the International Society for Autism Research, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 31 papers, 1 of them a synthesis that pooled it.
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Who cites it
31 citing papers in PubMed, 1 synthesis or guideline pooled it.
- The global epidemiology and health burden of the autism spectrum: findings from the Global Burden of Disease Study 2021.The lancet. Psychiatry · 2025Pooled it
- Autism: epidemiology, genetics, molecular mechanisms, clinical features, diagnosis, and management.Molecular biomedicine · 2026Review
- Autism in Adulthood: Psychiatric Comorbidity in High-Functioning Autistic Adults in an Outpatient Clinical Population.NeuroSci · 2025Article
- Household income among families with autistic children and youths in Canada: a cross-sectional matched cohort study.BMJ open · 2025Article
- Enhancing ADL skill acquisition in children with ASD through a personalized, fuzzy logic-based tablet game: a pilot study.Scientific reports · 2025Article
- Co-creating a Canadian autism mental health literacy resource: a qualitative analysis of advisory perspectives.Health research policy and systems · 2025Article
- Male and Female Healthcare Trajectories in Autism: Are There Any Differences Considering Age at Diagnosis and Intellectual or Developmental Disabilities Status?Autism research : official journal of the International Society for Autism Research · 2025Article
- Parents' priorities in choosing treatment options for children with autism - perspectives from Serbia.International journal of developmental disabilities · 2025Article
- A Qualitative Study of Adults' and Support Persons' Experiences of Support After Autism Diagnosis.Journal of autism and developmental disorders · 2024Article
- "Don't Promise Something You can't Deliver:" Caregivers' Advice for Improving Services to Adolescents and Young Adults with Autism.Autism research and treatment · 2023Article
- Perceived Support Needs of School-Aged Young People on the Autism Spectrum and Their Caregivers.International journal of environmental research and public health · 2022Article
- Deciphering the Diversity of Mental Models in Neurodevelopmental Disorders: Knowledge Graph Representation of Public Data Using Natural Language Processing.Journal of medical Internet research · 2022Article
- Experience of Autistic Children and Their Families During the Pandemic: From Distress to Coping Strategies.Journal of autism and developmental disorders · 2022Article
- Lifespan service receipt and unmet needs among individuals on the autism spectrum.Administration and policy in mental health · 2022Article
- Healthcare Services During the Transitions to Adulthood Among Individuals with ASD Aged 15-25 Years Old: Stakeholders' Perspectives.Journal of autism and developmental disorders · 2022Article
- The Serbian experience of challenges of parenting children with autism spectrum disorders during the COVID-19 pandemic and the state of emergency with lockdown.European child & adolescent psychiatry · 2022Article
- Service Use Among Transition-Age Youth with Autism Spectrum Disorder.Journal of autism and developmental disorders · 2022Article
- "We are doing the best we can to bridge the gap" - service provider perspectives of educational services for autism spectrum disorder in South Africa.Frontiers in psychiatry · 2022Article
- Development and Initial Testing of a Health-Related Independence Measure for Autistic Young Adults as Reported by Caregivers.Autism in adulthood · 2020Article
- Can a combination of mental health services and ADL therapies improve quality of life in families of children with autism spectrum disorder?Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2020Article
Corrections and comments
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Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Individuals with Autism Spectrum Disorder (ASD) have a range of health, community, and social support needs across the lifespan that create age-specific challenges in navigating service sectors. In this study, we set out to identify the priority needs of individuals with ASD across the lifespan, and the factors that predict receiving priority services. Participants included 3,317 individuals with ASD from a Canada-wide online caregiver survey, stratified into five age groups (preschool, elementary school age, adolescence, emerging adulthood, adulthood). Priority receipt was calculated as a ratio of current services that corresponded to individualized priority need. Age-stratified Poisson regression analyses were used to identify the sociodemographic, clinical and systemic predictors of priority receipt. Results indicate that the distribution of priority need varied by age, except for social skills programming, which was a high across all groups. The number of high and moderate priority needs diversified with age. Overall, 30% of individuals had none of their priority needs met and priority receipt decreased with age. Systemic factors were most consistently related to priority receipt across the lifespan. Understanding patterns and correlates of priority needs and use that currently exist in different age groups can inform policies to improve service access. Autism Res 2017, 10: 1436-1447. © 2017 International Society for Autism Research, Wiley Periodicals, Inc.
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