Evidence map›Paper›PMID 28379646›Full record

ArticleInternational journal of geriatric psychiatry2018

The occurrence and persistence of thoughts of suicide, self-harm and death in family caregivers of people with dementia: a longitudinal data analysis over 2 years.

Karlijn J Joling, Siobhan T O'Dwyer, Cees M P M Hertogh, Hein P J van Hout

Open access · hybridAbstract read
In one paragraph

Article in International journal of geriatric psychiatry, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 36 papers, 4 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
36citing papers in PubMed, 4 pooled it
8.0field-weighted citation impact, top 3% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

36 citing papers in PubMed, 4 syntheses or guidelines pooled it, 92 citations in OpenAlex.

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  12. Lived experiences of Malaysian family caregivers of patients with chronic illnesses: A qualitative study.Malaysian family physician : the official journal of the Academy of Family Physicians of Malaysia · 2025
    Article
  13. Commentary on Suicide in Family Caregivers: State of the Field.Journal of the American Geriatrics Society · 2024
    Article
  14. Article
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  17. Caring for people living with dementia and their informal caregivers: Current perspectives in Malaysia.Malaysian family physician : the official journal of the Academy of Family Physicians of Malaysia · 2024
    Article
  18. Article
  19. Suicide risk in caregivers.International psychogeriatrics · 2023
    Article
  20. Living with dementia: Why I am thinking of 'death'.Dementia (London, England) · 2023
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4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

4 authors at 1 institution in 1 country.

Karlijn J JolingAmsterdam Public Health research institute, VU University Medical Centre, Amsterdam, The Netherlands.ORCID 0000-0001-5301-6370
Siobhan T O'DwyerAmsterdam Public Health research institute, VU University Medical Centre, Amsterdam, The Netherlands.
Cees M P M HertoghAmsterdam Public Health research institute, VU University Medical Centre, Amsterdam, The Netherlands.
Hein P J van HoutAmsterdam Public Health research institute, VU University Medical Centre, Amsterdam, The Netherlands.
Amsterdam UMC Location Vrije Universiteit Amsterdam · NL

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveFamily caregivers of people with dementia often report high levels of stress and depression, but little is known about those who contemplate suicide or self-harm. This study explores thoughts of suicide, self-harm and death in dementia caregivers and investigates the characteristics that distinguish them from those without such thoughts.

methodsData were collected every 3 months, for 24 months, from 192 family caregivers of people with dementia living in the Netherlands. Caregivers did not have a clinical depression or anxiety disorder at baseline. Suicide-related thoughts were measured with an item from the Mini International Neuropsychiatric Interview, a diagnostic instrument for DSM-IV mental disorders. Fisher exact, analysis of variance or Kruskal-Wallis tests compared the characteristics of caregivers who had contemplated suicide with two comparison groups.

resultsWithin 24 months, 76 caregivers reported symptoms of a potential depression and were further assessed for suicidal thoughts. Nine carers (11.8%, 4.7% of the total sample) reported suicidal thoughts with three of those at multiple points. Caregivers with suicidal thoughts had more severe depressive and anxious symptoms, had a lower sense of competence and mastery, felt less happy and experienced more health problems, less family support and more feelings of loneliness than caregivers who had not.

conclusionSuicidal thoughts are present in dementia caregivers and can persist across the care trajectory. Various psychological and social characteristics significantly distinguish caregivers with suicidal thoughts from those without. More research is needed to enable the identification of high-risk caregivers and provide an evidence base for the development of preventive strategies and interventions. © 2017 The Authors. International Journal of Geriatric Psychiatry Published by John Wiley & Sons Ltd.

Indexed as

Attitude to DeathSuicidal IdeationAgedAged, 80 and overCaregiversDementiaDiagnostic and Statistical Manual of Mental DisordersFemaleHumansLogistic ModelsLongitudinal StudiesMaleMiddle AgedNetherlandsSelf-Injurious BehaviorStress, Psychologicaldementiafamily caregiversself-harmsuicidal thoughts

Identifiers

PMID28379646
PMCPMC5811919
OpenAlexW2604844474

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.