ArticleContemporary clinical trials communications2017
A successful approach to minimizing attrition in racial/ethnic minority, low-income populations.
Article in Contemporary clinical trials communications, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT01264718 (A Randomized Trial of Effects of Parent Mentors on Insuring Minority Children), which is not on this map. Cited by 36 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
A Randomized Trial of Effects of Parent Mentors on Insuring Minority Children
Who cites it
36 citing papers in PubMed.
- Research Burden in Pediatric Cancer: A Mixed Methods Study From the PediQUEST Response Trial.Journal of pain and symptom management · 2025Trial
- A Pilot Randomized Trial of an Obesity Prevention Program for High-Risk Infants in Primary Care.Journal of pediatric psychology · 2023Trial
- Strategies for recruitment and retention of underrepresented populations with chronic obstructive pulmonary disease for a clinical trial.BMC medical research methodology · 2019Trial
- Efficacy of digital CBT for insomnia to reduce depression across demographic groups: a randomized trial.Psychological medicine · 2019Trial
- Recruitment and Retention of Racially Minoritized Families in a Pediatric Behavioral Diabetes Research Study.Journal of clinical psychology in medical settings · 2026Article
- Clinical High-Risk for Psychosis in Latinx Populations: Common Issues and Recommendations for Improving Care.Early intervention in psychiatry · 2026Review
- Development of a structured tracking system to improve retention in a birth cohort in rural Ecuador.Global health action · 2025Article
- Towards better enrollment decision-making for perinatal clinical research: Reconsidering recruitment and consent processes to support family values and preferences.Seminars in perinatology · 2025Review
- Modality-level obstacles and initiatives to improve representation in fetal, infant, and toddler neuroimaging research samples.Developmental cognitive neuroscience · 2025Article
- Harnessing Mother's Strengths to THRIVE in Obesity Prevention Efforts: A Qualitative Study.Clinical practice in pediatric psychology · 2025Article
- The HEALthy Brain and Child Development Study (HBCD) experience: Recruiting and retaining diverse families in a longitudinal, multi-method early childhood study.Developmental cognitive neuroscience · 2024Article
- Mapping Strategies for Reaching Socioeconomically Disadvantaged Populations in Clinical Trials.JAMA network open · 2024Article
- Equity Concerns Across Pediatric Research Recruitment: An Analysis of Research Staff Interviews.Academic pediatrics · 2024Article
- Use of Bland-Altman Analysis to Examine the Racial and Ethnic Representativeness of Study Populations in Community-Based Pediatric Health Research.JAMA network open · 2023Article
- Recruitment, retention, and intervention adherence for a chronic illness self-management intervention with the Apsáalooke Nation.Public health review · 2022Article
- Facilitators and barriers to pediatric clinical trial recruitment and retention in rural and community settings: A scoping review of the literature.Clinical and translational science · 2022Article
- Accrual and retention of diverse patients in psychosocial cancer clinical trials.Journal of clinical and translational science · 2022Article
- Use of Diaries for Family Members of Intensive Care Unit Patients to Reduce Long-Term PTSD: A Pilot Study.Journal of patient experience · 2022Article
- A perspective on enhancing representative samples in developmental human neuroscience: Connecting science to society.Frontiers in integrative neuroscience · 2022Article
- Social determinants of participant recruitment and retention in a prospective cohort study of pediatric mild traumatic brain injury.Frontiers in neurology · 2022Article
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
backgroundRecruiting and retaining minority participants in clinical trials continue to be major challenges. Although multiple studies document lower minority trial enrollment, much less is known about effective minority retention strategies. Our objectives were to evaluate an innovative approach to high RCT retention of minority children, and identify child/caregiver characteristics predicting attrition.
methodsThe Kids' HELP trial examined the effects of Parent Mentors on insuring uninsured minority children. We tested a retention strategic framework consisting of: 1) optimizing cultural/linguistic competency; 2) staff training on participant relationships and trust; 3) comprehensive participant contact information; 4) an electronic tracking database; 5) reminders for upcoming outcomes-assessment appointments; 6) frequent, sustained contact attempts for non-respondents; 7) financial incentives; 8) individualized rapid-cycle quality-improvement approaches to non-respondents; 9) reinforcing study importance; and 10) home assessment visits. We compared attrition in Kids' HELP vs. two previous RCTs in similar populations, and conducted bivariate and multivariable analyses of factors associated with Kids' HELP attrition.
resultsAttrition in Kids' HELP was lower than in two similar RCTs, at 10.9% vs. 37% and 40% (
conclusionsA retention strategic framework was successful in minimizing attrition in minority, low-income children. Participants missing first assessment appointments were at highest risk of subsequent attrition. These findings suggest that deploying this framework may help RCT retention of low-income minority children, particularly those at the highest risk of subsequent attrition.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.