Evidence map›Paper›PMID 28376752›Full record

SynthesisBMC public health2017

Ethical issues in public health surveillance: a systematic qualitative review.

Corinna Klingler, Diego Steven Silva, Christopher Schuermann, Andreas Alois Reis, Abha Saxena, Daniel Strech

Abstract readSystematic Review
In one paragraph

Synthesis in BMC public health, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 35 papers, 5 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
35citing papers in PubMed, 5 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

35 citing papers in PubMed, 5 syntheses or guidelines pooled it.

  1. Social justice for adults with high body weight: a systematic review.International journal for equity in health · 2026
    Pooled it
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  6. The Continuity Trap in Data Science Health Research.Journal of medical Internet research · 2026
    Article
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  8. Review
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  20. Wastewater research and surveillance: an ethical exploration.Environmental science : water research & technology · 2022
    Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Corinna KlinglerInstitute of Ethics, History and Theory of Medicine at LMU Munich, Lessingstr. 2, 80336, Munich, Germany. corinna.klingler@med.uni-muenchen.de.ORCID 0000-0002-8148-5999
Diego Steven SilvaFaculty of Health Sciences, Simon Fraser University, Blusson Hall, Room 11008, 8888 University Drive, Burnaby, B.C, V5A 1S6, Canada.
Christopher SchuermannInstitute for History, Ethics and Philosophy of Medicine, Hannover Medical School, Carl-Neuberg-Str. 1, 30625, Hannover, Germany.
Andreas Alois ReisGlobal Health Ethics Unit, World Health Organization, Avenue Appia 20, Geneva, GE, 1211, Switzerland.
Abha SaxenaGlobal Health Ethics Unit, World Health Organization, Avenue Appia 20, Geneva, GE, 1211, Switzerland.
Daniel StrechInstitute for History, Ethics and Philosophy of Medicine, Hannover Medical School, Carl-Neuberg-Str. 1, 30625, Hannover, Germany.

Funding

World Health Organization 001
6 · The paper itself

Abstract

backgroundPublic health surveillance is not ethically neutral and yet, ethics guidance and training for surveillance programmes is sparse. Development of ethics guidance should be based on comprehensive and transparently derived overviews of ethical issues and arguments. However, existing overviews on surveillance ethics are limited in scope and in how transparently they derived their results. Our objective was accordingly to provide an overview of ethical issues in public health surveillance; in addition, to list the arguments put forward with regards to arguably the most contested issue in surveillance, that is whether to obtain informed consent.

methodsEthical issues were defined based on principlism. We assumed an ethical issue to arise in surveillance when a relevant normative principle is not adequately considered or two principles come into conflict. We searched Pubmed and Google Books for relevant publications. We analysed and synthesized the data using qualitative content analysis.

resultsOur search strategy retrieved 525 references of which 83 were included in the analysis. We identified 86 distinct ethical issues arising in the different phases of the surveillance life-cycle. We further identified 20 distinct conditions that make it more or less justifiable to forego informed consent procedures.

conclusionsThis is the first systematic qualitative review of ethical issues in public health surveillance resulting in a comprehensive ethics matrix that can inform guidelines, reports, strategy papers, and educational material and raise awareness among practitioners.

Indexed as

Ethics, ResearchPublic Health SurveillanceHumansEthicsInformed consentPublic health surveillanceQualitative evidence synthesisSystematic review

Identifiers

PMID28376752
PMCPMC5381137

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.