ArticleThe American journal on addictions2017
Learning from Latino voices: Focus Groups' Insights on Participation in Genetic Research.
Article in The American journal on addictions, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
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Who cites it
12 citing papers in PubMed, 17 citations in OpenAlex.
- Participant-guided development of bilingual genomic educational infographics for Electronic Medical Records and Genomics Phase IV study.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- Addressing underrepresentation in genomics research through community engagement.American journal of human genetics · 2022Review
- Creating accessible Spanish language materials for Clinical Sequencing Evidence-Generating Research consortium genomic projects: challenges and lessons learned.Personalized medicine · 2021Article
- Recruiting for diversity: a pilot test of recruitment strategies for a national alcohol survey with mail-in genetic data collection.Journal of community genetics · 2021Article
- Factors Influencing Participation in Biospecimen Research among Parents of Youth with Mental Health Conditions.Public health genomics · 2020Article
- Feasibility of a mail-in, self-administered dried blood spot collection method in national, population-based alcohol surveys in the United States.Addiction (Abingdon, England) · 2019Article
- Implementation of a Stress Intervention with Latino Immigrants in a Non-traditional Migration City.Journal of immigrant and minority health · 2019Article
- How can we get Iraq- and Afghanistan-deployed US Veterans to participate in health-related research? Findings from a national focus group study.BMC medical research methodology · 2018Article
- Precision Medicine: Familiarity, Perceived Health Drivers, and Genetic Testing Considerations Across Health Literacy Levels in a Diverse Sample.Journal of genetic counseling · 2018Article
- Introduction: Special issue on genetic research of alcohol use disorder in diverse racial/ethnic populations.The American journal on addictions · 2017Article
- Conclusion: Special issue on genetic and alcohol use disorder research with diverse racial/ethnic groups: Key findings and potential next steps.The American journal on addictions · 2017Article
- Integrating Genomic Screening into Primary Care: Provider Experiences Caring for Latino Patients at a Community-Based Health Center.Journal of primary care & community healthArticle
Corrections and comments
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Authors and funding
4 authors at 2 institutions in 1 country.
Funding
Abstract
BACKGROUND AND
objectivesThere is a paucity of genetics research examining alcohol use among Latinos. The purpose of this study is to examine Latino perceptions of participation in alcohol studies that collect biological samples, an important precursor to increasing their participation in genetics research.
methodsA synthesis of the literature addressing participation of racial/ethnic minorities in alcohol genetics research was undertaken. We developed a framework of themes related to barriers and facilitators for participation, which we then used to analyze two focus groups held with 18 Latino participants.
resultsFrom the literature review, we identified nine themes related to facilitators of and barriers to participation. They are, on continua: curiosity to disinterest; trust to mistrust; understanding to confusion; safety to danger; inclusion to exclusion; sense of connection to disconnection; hope to despair; ease to hassle; and benefit to cost. Another theme emerged from the focus groups: previous experience to no previous experience with health research.
conclusionsApplying the themes from the literature review to Latino perspectives on providing biological samples for alcohol research helps expand their definition and applicability. Consideration of these themes when designing recruitment/retention materials and strategies may encourage Latino participation in alcohol genetics research. SCIENTIFIC SIGNIFICANCE: An understanding of these themes and their significance for Latinos is offered in the form of "guiding questions" for researchers to consider as we strive for more inclusive research. Focus group participants were Mexican American; future research should further explore perspectives of this heterogeneous demographic group by studying other Latino subgroups. (Am J Addict 2017;26:477-485).
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.