Evidence map›Paper›PMID 28374104›Full record

ArticleMedicine, health care, and philosophy2017

Understanding patient needs without understanding the patient: the need for complementary use of professional interpreters in end-of-life care.

Demi Krystallidou, Ignaas Devisch, Dominique Van de Velde, Peter Pype

Abstract readCase Reports
PubMed Publisher
In one paragraph

Article in Medicine, health care, and philosophy, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Demi KrystallidouFaculty of Arts, University of Leuven, Sint-Andries Campus Antwerp, Sint-Andriesstraat 2, 2000, Antwerp, Belgium. demi.krystallidou@kuleuven.be.ORCID http://orcid.org/0000-0002-4821-6383
Ignaas DevischDepartment of Primary Care and Family Medicine, Faculty of Medicine and Health Sciences, Ghent University, Campus UZ - 6K3, De Pintelaan 185, 9000, Ghent, Belgium.
Dominique Van de VeldeDepartment of Rehabilitation Sciences and Physiotherapy, Faculty of Medicine and Health Sciences, Ghent University, Campus UZ- 2B3, De Pintelaan 185, 9000, Ghent, Belgium.
Peter PypeDepartment of Primary Care and Family Medicine, Faculty of Medicine and Health Sciences, Ghent University, Campus UZ - 6K3, De Pintelaan 185, 9000, Ghent, Belgium.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

High-quality doctor-patient communication in end-of-life care results in better quality of life for patients. In linguistically and culturally diverse societies, language discordant consultations become daily practice, leading to difficulties in eliciting patient preferences toward end-of-life care. Although family members invariably act as informal interpreters, this may cause some ethical dilemmas. We present a case of a palliative patient whose son acted as an interpreter. This case generated a triple- layered ethical dilemma: (i) how to safeguard patient autonomy against paternalistic interventions by family members, (ii) how to respect the relational context in which patient autonomy can be realized, and (iii) how to respect the ethno-cultural values of the patient and his family. These issues are being discussed and reflected upon within the framework shared decision making involving informal- and professional interpreters. The complementary use of professional interpreters next to family members acting as informal interpreters is recommended.

Indexed as

Patient ParticipationTranslatingAgedConfidentialityCultural CompetencyFemaleHumansLanguagePersonal AutonomyQuality of LifeTerminal CareAgencyCommunicationInterpretersPatient autonomyPatient needsShared decision making

Identifiers

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.