ArticleHEC forum : an interdisciplinary journal on hospitals' ethical and legal issues2017
Treatment Decisions for Babies with Trisomy 13 and 18.
Article in HEC forum : an interdisciplinary journal on hospitals' ethical and legal issues, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
8 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Long-term survival of children born with congenital anomalies: A systematic review and meta-analysis of population-based studies.PLoS medicine · 2020Pooled it
- Competing World Views, Professional Norms, and Conscience.HEC forum : an interdisciplinary journal on hospitals' ethical and legal issues · 2025Article
- Long-Term Survival Among Children With Trisomy 13 and Trisomy 18 by Cytogenetic Status.JAMA network open · 2025Article
- Now what: navigating care of maternal/fetal dyads with bilateral renal agenesis after RAFT. A physician and parent point of view.Pediatric nephrology (Berlin, Germany) · 2025Article
- Article
- Ethical issues about the paradigm shift in the treatment of children with trisomy 18.European journal of pediatrics · 2020Review
- Neonatal respiratory extracorporeal membrane oxygenation and primary diagnosis: trends between two decades.Journal of perinatology : official journal of the California Perinatal Association · 2020Article
- Introduction: Childhood and Disability.HEC forum : an interdisciplinary journal on hospitals' ethical and legal issues · 2017Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Many babies with trisomy 13 and 18 die in the first year of life. Survivors all have severe cognitive impairment. There has been a debate among both professionals and parents about whether it is appropriate to provide life-sustaining interventions to babies with these serious conditions. On one side of the debate are those who argue that there is no point in providing invasive, painful, and expensive procedures when the only outcomes are either early death or survival with severe cognitive impairment. Others suggest that, although mortality is high and cognitive impairment universal, babies with these conditions have an acceptable quality of life. In this paper, we will discuss both points of view. We will review the ways in which these conditions are portrayed in pediatrics textbooks and on social media sites that offer support to parents. We will then suggest an appropriate way to deal with clinical decisions for babies with these trisomies.
Indexed as
Identifiers
28365826What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.