Evidence map›Paper›PMID 28365620›Full record

ArticleClinical medicine (London, England)2017

Current characteristics, challenges and coping strategies of young people with cystic fibrosis as they transition to adulthood.

Kristina Askew, Jade Bamford, Nicholas Hudson, Juliana Moratelli, Rachel Miller, Alan Anderson, Simon Doe, Stephen J Bourke

Abstract read
In one paragraph

Article in Clinical medicine (London, England), 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Kristina AskewRoyal Victoria Infirmary, Newcastle upon Tyne, UK.
Jade BamfordRoyal Victoria Infirmary, Newcastle upon Tyne, UK.
Nicholas HudsonRoyal Victoria Infirmary, Newcastle upon Tyne, UK.
Juliana MoratelliRoyal Victoria Infirmary, Newcastle upon Tyne, UK.
Rachel MillerRoyal Victoria Infirmary, Newcastle upon Tyne, UK.
Alan AndersonRoyal Victoria Infirmary, Newcastle upon Tyne, UK.
Simon DoeRoyal Victoria Infirmary, Newcastle upon Tyne, UK.
Stephen J BourkeRoyal Victoria Infirmary, Newcastle upon Tyne, UK Stephen.Bourke@nuth.nhs.uk.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

This study provides detailed data on the current characteristics, perceptions and outcomes of 45 young people with cystic fibrosis (CF) as they transition into adulthood. Although many had severe disease, they generally coped well, found attendance at a transition clinic helpful and welcomed the increased independence of an adult healthcare environment. Levels of psychological distress were low with only 15.6% having anxiety and 6.7% depression. The main psychological coping strategy used was optimistic acceptance. Overall, most remained stable after transfer but 33% had some decline in lung function and 9% in nutritional status, requiring intensification of treatment. They had high levels of satisfaction with their relationships and life situations and 76% were in employment or education. These results are encouraging and as life expectancy improves, young adults with CF are coping well with transition into adulthood.

Indexed as

Adaptation, PsychologicalCystic FibrosisAdolescentAdultChronic DiseaseCohort StudiesFemaleHumansMalePersonal SatisfactionTransition to Adult CareYoung AdultCoping strategiescystic fibrosislong-term conditionstransitional careyoung adults

Identifiers

PMID28365620
PMCPMC6297616

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.