Evidence map›Paper›PMID 28357785›Full record

ArticleJournal of cancer survivorship : research and practice2017

Patterns of unmet needs in adolescent and young adult (AYA) cancer survivors: in their own words.

Alex W K Wong, Ting-Ting Chang, Katrina Christopher, Stephen C L Lau, Lynda K Beaupin, Brad Love, Kim L Lipsey, Michael Feuerstein

Abstract read
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In one paragraph

Article in Journal of cancer survivorship : research and practice, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 41 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
41citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

41 citing papers in PubMed, 1 synthesis or guideline pooled it.

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  16. Fertility Preservation in Individuals with Cancer: A Joint Position Statement from APHON, CANO/ACIO, and ONS.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2024
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  17. A qualitative study on the healthcare experiences of adolescents and young adults (AYA) with an uncertain or poor cancer prognosis.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Alex W K WongProgram in Occupational Therapy and Department of Neurology, Washington University School of Medicine, 4444 Forest Park Ave, Campus Box 8505, St. Louis, MO, 63108, USA. wongal@wustl.edu.
Ting-Ting ChangProgram in Occupational Therapy, Washington University School of Medicine, St. Louis, MO, USA.
Katrina ChristopherProgram in Occupational Therapy, Washington University School of Medicine, St. Louis, MO, USA.
Stephen C L LauProgram in Occupational Therapy, Washington University School of Medicine, St. Louis, MO, USA.
Lynda K BeaupinRoswell Park Cancer Institute and Women and Children's Hospital of Buffalo, Buffalo, NY, USA.
Brad LoveStan Richards School of Advertising and Public Relations, Moody College of Communication, University of Texas, Austin, TX, USA.
Kim L LipseyBernard Becker Medical Library, Washington University School of Medicine, St. Louis, MO, USA.
Michael FeuersteinDepartments of Medical and Clinical Psychology and Preventive Medicine and Biometrics, Uniformed Services University of the Health Sciences, Bethesda, MD, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeCategorization of the needs of AYA cancer survivors is primarily based on quantitative analyses of epidemiological and observational research. The present study classified the phenomenological experiences of AYA survivors based on their own language.

methodsA systematic approach for selecting qualitative studies of unmet needs in AYA cancer survivors was used. Following selection based on quality, survivor statements were entered verbatim and thematic analysis was conducted using NVivo qualitative research software.

resultsA total of 1993 AYA cancer survivors (post-treatment) were included in 58 studies (78% individual interviews). Mean age was 27.6 with an average of 8.6 years post-primary treatment. The organizational framework reported in this study was based on a heterogeneous group of cancer types. Thirteen themes including symptoms, function, reproductive health, emotional well-being, health management, health care system, social interaction, romantic relationships, cancer disclosure, normalcy, career development and employment, and school and fiscal concerns were identified. Forty-eight subthemes were also identified covering such areas as fertility, integrative health services, advice for cancer disclosure, family interaction, and insurance challenges.

conclusionDirect analysis of text identified many common unmet needs similarly reported in the quantitative literature. The phenomenological data also provided a breakdown of unmet needs into subthemes or elements of unmet needs. IMPLICATIONS FOR CANCER SURVIVORS: This information can help form the basis for a personalized, valid, and reliable evaluation tool of the range of unmet needs in AYA survivors.

Indexed as

AdultCancer SurvivorsFemaleHealth Services Needs and DemandHumansMaleNeoplasmsQualitative ResearchAdolescent and young adultCancer survivorshipMixed methods researchNeedsQualitative

Identifiers

PMID28357785

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.