ArticleClinical journal of the American Society of Nephrology : CJASN2017
"Maybe They Don't Even Know That I Exist": Challenges Faced by Family Members and Friends of Patients with Advanced Kidney Disease.
Article in Clinical journal of the American Society of Nephrology : CJASN, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
11 citing papers in PubMed.
- The nearness of the state: substitution practices at the ragged ends of life in the U.S.BioSocieties · 2026Article
- The role of social networks in supporting self-management in CKD: a narrative synthesis.BMC nephrology · 2025Review
- Diagnosis and Management of Dementia for the Nephrology Clinician: A Review.American journal of kidney diseases : the official journal of the National Kidney Foundation · 2025Review
- Patient Activation, Social Support, Physician Trust, and Shared Dialysis Decision-Making: A Cross-Sectional Investigation.Kidney medicine · 2025Article
- Establishing Research Priorities in Geriatric Nephrology: A Delphi Study of Clinicians and Researchers.American journal of kidney diseases : the official journal of the National Kidney Foundation · 2025Article
- Ripple Effects: CKD and Physical Function.Kidney medicine · 2024Article
- "Systems seem to get in the way": a qualitative study exploring experiences of accessing and receiving support among informal caregivers of people living with chronic kidney disease.BMC nephrology · 2024Article
- Beyond Autonomy: Ethics of Decision Making About Treatments for Kidney Failure at the Extremes of Age.American journal of kidney diseases : the official journal of the National Kidney Foundation · 2023Article
- The Impact of Care Partners on the Mobility of Older Adults Receiving Hemodialysis.Kidney medicine · 2022Article
- Caring for older patients with advanced chronic kidney disease and considering their needs: a qualitative study.BMC nephrology · 2020Article
- Association of Family Ratings of Quality of End-of-Life Care With Stopping Dialysis Treatment and Receipt of Hospice Services.JAMA network open · 2019Observational
Corrections and comments
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Authors and funding
9 authors.
Funding
Abstract
BACKGROUND AND
objectivesFamily members and friends of patients with advanced chronic illness are increasingly called on to assist with ever more complex medical care and treatment decisions arising late in the course of illness. Our goal was to learn about the experiences of family members and friends of patients with advanced kidney disease. DESIGN, SETTING, PARTICIPANTS, & MEASUREMENTS: As part of a study intended to identify opportunities to enhance advance care planning, we conducted semistructured interviews at the Veterans Affairs Puget Sound Health Care System with 17 family members and friends of patients with advanced kidney disease. Interviews were conducted between April of 2014 and May of 2016 and were audiotaped, transcribed, and analyzed inductively using grounded theory to identify emergent themes.
resultsThe following three themes emerged from interviews with patients' family members and friends: (
conclusionsInterviews with family members and friends of patients with advanced kidney disease provide a window on the complex dynamics shaping their engagement in patients' care, and highlight the potential value of offering opportunities for engagement throughout the course of illness.
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