Evidence map›Paper›PMID 28353182›Full record

ArticleEuropean child & adolescent psychiatry2017

An international qualitative study of ability and disability in ADHD using the WHO-ICF framework.

Soheil Mahdi, Marisa Viljoen, Rafael Massuti, Melissa Selb, Omar Almodayfer, Sunil Karande, Petrus J de Vries, Luis Rohde, Sven Bölte

Open access · hybridAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in European child & adolescent psychiatry, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 33 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
33citing papers in PubMed, 2 pooled it
2.9field-weighted citation impact, top 9% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

33 citing papers in PubMed, 2 syntheses or guidelines pooled it, 82 citations in OpenAlex.

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  19. Identifying different patterns of emotion dysregulation in adult ADHD.Borderline personality disorder and emotion dysregulation · 2023
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 5 institutions in 4 countries.

Soheil MahdiDepartment of Women's and Children's Health, Center of Neurodevelopmental Disorders (KIND), Paediatric Neuropsychiatry Unit, Karolinska Institutet, Stockholm, Sweden.
Marisa ViljoenDivision of Child and Adolescent Psychiatry, University of Cape Town, Cape Town, South Africa.
Rafael MassutiADHD Outpatient Program, Hospital de Clínicas de Porto Alegre, Federal University of Rio Grande do Sul, Porto Alegre, Brazil.
Melissa SelbICF Research Branch, a cooperation partner within the WHO Collaborating Centre for the Family of International Classifications in Germany (at DIMDI), Nottwil, Switzerland.
Omar AlmodayferMental Health Department, KAMC-R, MNGHA, Riyadh, Saudi Arabia.
Sunil KarandeLearning Disability Clinic, Department of Paediatrics, Seth G.S. Medical College and K.E.M Hospital, Mumbai, India.
Petrus J de VriesDivision of Child and Adolescent Psychiatry, University of Cape Town, Cape Town, South Africa.
Luis RohdeADHD Outpatient Program, Hospital de Clínicas de Porto Alegre, Federal University of Rio Grande do Sul, Porto Alegre, Brazil.
Sven BölteDepartment of Women's and Children's Health, Center of Neurodevelopmental Disorders (KIND), Paediatric Neuropsychiatry Unit, Karolinska Institutet, Stockholm, Sweden. sven.bolte@ki.se.
Stockholm County Council · SEUniversity of Cape Town · ZAHospital de Clínicas de Porto Alegre · BRSwiss Paraplegic Research · CHUniversidade Federal do Rio Grande do Sul · BR

Funding

Forskningsrådet om Hälsa, Arbetsliv och Välfärd 259-2012-24Svenska Forskningsrådet Formas 259-2012-24Vetenskapsrådet 523-2009-7054VINNOVA 259-2012-24
6 · The paper itself

Abstract

This is the third in a series of four cross-cultural empirical studies designed to develop International Classification of Functioning, Disability and Health (ICF, and Children and Youth version, ICF(-CY) Core Sets for Attention-Deficit Hyperactivity Disorder (ADHD). To explore the perspectives of individuals diagnosed with ADHD, self-advocates, immediate family members and professional caregivers on relevant areas of impairment and functional abilities typical for ADHD across the lifespan as operationalized by the ICF(-CY). A qualitative study using focus group discussions or semi-structured interviews of 76 participants, divided into 16 stakeholder groups. Participants from five countries (Brazil, India, Saudi Arabia, South Africa and Sweden) were included. A deductive qualitative content analysis was conducted to extract meaningful functioning and disability concepts from verbatim material. Extracted concepts were then linked to ICF(-CY) categories by independent researchers using a standardized linking procedure. In total, 82 ICF(-CY) categories were identified, of which 32 were related to activities and participation, 25 to environmental factors, 23 to body functions and 2 to body structures. Participants also provided opinions on experienced positive sides to ADHD. A high level of energy and drive, creativity, hyper-focus, agreeableness, empathy, and willingness to assist others were the most consistently reported strengths associated with ADHD. Stakeholder perspectives highlighted the need to appraise ADHD in a broader context, extending beyond diagnostic criteria into many areas of ability and disability as well as environmental facilitators and barriers. This qualitative study, along with three other studies (comprehensive scoping review, expert survey and clinical study), will provide the scientific basis to define ICF(-CY) Core Sets for ADHD, from which assessment tools can be derived for use in clinical and research setting, as well as in health care administration.

Indexed as

AdolescentAttention Deficit Disorder with HyperactivityChildCross-Cultural ComparisonFemaleHumansInternational Classification of Functioning, Disability and HealthMaleQualitative ResearchQuality of LifeWorld Health OrganizationADHDAssessmentDSMICDImpairmentNeurodevelopmental disorderPsychiatryQualitative studyQuality of life

Identifiers

PMID28353182
PMCPMC5610225
OpenAlexW4235104363

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.