ArticleHealth expectations : an international journal of public participation in health care and health policy2017
Patients' views on their decision making during inpatient rehabilitation after newly acquired spinal cord injury-A qualitative interview-based study.
Article in Health expectations : an international journal of public participation in health care and health policy, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers, 2 of them syntheses that pooled it.
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Who cites it
25 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Rehabilitation of the lower extremities, standing and walking function in people with spinal cord injury or disease: Guideline of the German-Speaking Medical Society for Spinal Cord Injury.German medical science : GMS e-journal · 2025Guideline
- Experiences with and perspectives on goal setting in spinal cord injury rehabilitation: a systematic review of qualitative studies.Spinal cord · 2020Pooled it
- Spinal Cord Injury as a Socially Lived Disability: A Phenomenological Study of Rehabilitation and Everyday Life Among Community-Dwelling Individuals.Journal of clinical medicine · 2026Article
- Bridging the gap: The experiences and needs of people with spinal cord injury when transitioning out of inpatient rehabilitation.The South African journal of physiotherapy · 2026Article
- Patient autonomy in inpatient medical rehabilitation in Germany-study protocol of a multicenter cross-sectional study.BMC medical ethics · 2025Article
- "What should a rehabilitation hospital be like?" Priorities and expectations of people with spinal cord injury in Türkiye.Spinal cord · 2025Article
- Patient-Provider Communication in Spinal Cord Injury: A Scoping Review and Call for Further Research.Topics in spinal cord injury rehabilitation · 2025Article
- Bridging the gap: a translational perspective in spinal cord injury.Experimental biology and medicine (Maywood, N.J.) · 2024Review
- Striving to establish patient participation in rehabilitation: the challenges experienced by nursing staff when changing practice to include the patient's perspective.Frontiers in rehabilitation sciences · 2024Article
- Patients' experiences with goal setting during initial rehabilitation after newly acquired spinal cord injury: A pilot qualitative interview study.The journal of spinal cord medicine · 2023Article
- Lifestyle assessment in individuals with spinal cord injuries caused by accidents and disasters in qualitative studies published from 1990 to 2020: A meta-synthesis of qualitative study.Health science reports · 2023Article
- Addressing the Needs of Preclinical Student Researchers in the SCI Community to Advance Communication and Education.eNeuro · 2023Article
- Communicating Standing and Walking Data after Spinal Cord Injury: A Patient-Engaged, Qualitative Study.Topics in spinal cord injury rehabilitation · 2023Article
- A meaningful everyday life experienced by adults with acquired neurological impairments: A scoping review.PloS one · 2023Article
- Competing discourses as barriers to change in rehabilitation nursing: a discourse analysis.Frontiers in rehabilitation sciences · 2023Article
- Patient experiences of codesigned rehabilitation interventions in hospitals: a rapid review.BMJ open · 2022Review
- Predicting change in labour market participation of people with spinal cord injury (SCI): longitudinal evidence from the Swiss SCI community survey.Spinal cord · 2022Article
- Nursing staff facilitate patient participation by championing the patient's perspective: An action research study in spinal cord injury rehabilitation.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Building and Sustaining Inpatient-Clinician Collaboration in Spinal Cord Injury Rehabilitation: A Case Example Using the Stoke Mandeville Spinal Needs Assessment Checklist (SMS-NAC) and Goal Planning Programme.Journal of clinical medicine · 2022Article
- Empowerment, Communication, and Navigating Care: The Experience of Persons With Spinal Cord Injury From Acute Hospitalization to Inpatient Rehabilitation.Frontiers in rehabilitation sciences · 2022Article
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionInvolving patients in decision making is a legal requirement in many countries, associated with better rehabilitation outcomes, but not easily accomplished during initial inpatient rehabilitation after severe trauma. Providing medical treatment according to the principles of shared decision making is challenging as a point in case for persons with spinal cord injury (SCI).
objectivesThe aim of this study was to retrospectively explore the patients' views on their participation in decision making during their first inpatient rehabilitation after onset of SCI, in order to optimize treatment concepts.
methodsA total of 22 participants with SCI were interviewed in-depth using a semi-structured interview scheme between 6 months and 35 years post-onset. Interviews were transcribed verbatim and analysed with the Mayring method for qualitative content analysis.
resultsParticipants experienced a substantially reduced ability to participate in decision making during the early phase after SCI. They perceived physical, psychological and environmental factors to have impacted upon this ability. Patients mentioned regaining their ability to make decisions was an important goal during their first rehabilitation. Receiving adequate information in an understandable and personalized way was a prerequisite to achieve this goal. Other important factors included medical and psychological condition, personal engagement, time and dialogue with peers.
conclusionDuring the initial rehabilitation of patients with SCI, professionals need to deal with the discrepancy between the obligation to respect a patient's autonomy and their diminished ability for decision making.
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