ArticleInternational journal of audiology2018
The parents' perspective of the early diagnostic period of their child with hearing loss: information and support.
Article in International journal of audiology, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
What it found
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The trial behind it
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Who cites it
18 citing papers in PubMed, 54 citations in OpenAlex.
- The Speech Intelligibility Index: Tutorial and Applications for Children Who Are Deaf and Hard of Hearing.American journal of audiology · 2025Article
- Cultural diversity in early hearing detection and intervention: service provider perspectives.Journal of deaf studies and deaf education · 2025Article
- Exploration of parental perspectives and involvement in therapeutic communication approaches for deaf and/or hard-of-hearing children at special schools in South Africa.Medical humanities · 2025Article
- Caregiver Challenges and Opportunities for Accessing Early Hearing Detection and Intervention: A Narrative Inquiry from South Africa.International journal of environmental research and public health · 2025Article
- Parental Evaluation of a Responsive Parenting Program for Infants with Hearing Loss.Children (Basel, Switzerland) · 2025Article
- A scoping review on the nature of parental involvement among Pacific and minority populations with hearing loss.Journal of the Royal Society of New Zealand · 2025Review
- Review
- Early Experiences of Parents of Children who are Deaf or Hard of Hearing: Navigating through Identification, Intervention, and Beyond.Journal of early hearing detection and intervention · 2023Article
- Multidimensional Family-Centred Early Intervention in Children with Hearing Loss: A Conceptual Model.Journal of clinical medicine · 2022Review
- Exploring Parent Support Needs during the Newborn Hearing Diagnosis Pathway.Journal of clinical medicine · 2022Article
- Family and Rehabilitation of Children with Cochlear Implant: A Qualitative Study.Florence Nightingale journal of nursing · 2022Article
- Parent-reported quality of life in children with cochlear implants differs across countries.Frontiers in psychology · 2022Article
- Coaching Caregivers of Children who are Deaf or Hard of Hearing: A Scoping Review.Journal of deaf studies and deaf education · 2021Article
- Emerging Data from a Newborn Hearing Screening Program in Sharjah, United Arab Emirates.International journal of pediatrics · 2021Article
- Learning from the Longitudinal Outcomes of Children with Hearing Impairment (LOCHI) study: summary of 5-year findings and implications.International journal of audiology · 2018Article
- Factors influencing parents' decisions about communication choices during early education of their child with hearing loss: a qualitative study.Deafness & education international : the journal of the British Association of Teachers of the Deaf · 2018Article
- Factors Influencing Caregiver Decision Making to Change the Communication Method of their Child with Hearing Loss.Deafness & education international : the journal of the British Association of Teachers of the Deaf · 2018Article
- Hospital and health administrator level barriers and priorities for National Neonatal Hearing Screening in Pakistan: A thematic analysis.Pakistan journal of medical sciencesArticle
Corrections and comments
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Authors and funding
5 authors at 3 institutions in 1 country.
Funding
Abstract
objectiveThis study aimed to explore the perspectives of caregivers regarding the information and support they received following diagnosis of their child's hearing loss.
designA mixed methods explanatory sequential design was conducted. STUDY SAMPLE: A total of 445 caregivers of children completed a written survey, and five parents participated in qualitative in-depth interviews.
resultsThe most common sources of information for caregivers were discussion with an audiologist, written information, and discussion with a medical professional. Approximately 85% of caregivers reported they were satisfied with the personal/emotional support and information received from service providers. Additional comments from 91 caregivers indicated that 11% experienced a breakdown in information transfer with health professionals. Interviews conducted with five parents from three families revealed two themes which described the diagnostic period as a difficult and emotional experience for parents: (1) support and information provided during diagnosis: what happens first? and (2) accessing early intervention services following a diagnosis of hearing loss: navigating the maze.
conclusionsThe findings of this study give insight into the perspectives of caregivers who have a child diagnosed with hearing loss. The importance of providing timely information and personal/emotional support to caregivers cannot be underestimated.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.