ArticlePatient education and counseling2017
Does patient activation level affect the cancer patient journey?
Article in Patient education and counseling, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 58 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
58 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Decision aids for cancer survivors' engagement with survivorship care services after primary treatment: a systematic review.Journal of cancer survivorship : research and practice · 2024Pooled it
- Electronic Systems for Patients to Report and Manage Side Effects of Cancer Treatment: Systematic Review.Journal of medical Internet research · 2019Pooled it
- A randomized controlled trial of shared decision-making treatment planning process to enhance shared decision-making in patients with MBC.Breast cancer research and treatment · 2024Trial
- A patient activation intervention in primary care for patients with chronic pain on long term opioid therapy: results from a randomized control trial.BMC health services research · 2024Trial
- Trial
- Diabetes status modifies the efficacy of home-based kidney care for Zuni Indians in a randomized controlled trial.Journal of diabetes and its complications · 2021Trial
- Factors influencing patient activation among patients with cancer: A scoping review.Asia-Pacific journal of oncology nursing · 2026Review
- Article
- Survivorship preparedness and activation among survivors of lymphoma.Journal of cancer survivorship : research and practice · 2026Article
- Triad of agency, mood, and meaning: A nursing perspective on patient activation, depression, and quality of life in older adults receiving palliative oncology care.Palliative & supportive care · 2026Article
- Article
- Analysis of Latent Profiles and Influencing Factors of Patient Activation Among Colorectal Cancer Patients with an Enterostomy.Patient preference and adherence · 2026Article
- A patient-mediated implementation strategy to improve nutrition care delivery for esophageal and gastric cancer: a study protocol for a pilot randomized controlled trial.Journal of health, population, and nutrition · 2025Article
- Hidden Costs of Endocrine Therapy for Black Breast Cancer Survivors: A Qualitative Examination of Patient and Provider Experiences.Clinical breast cancer · 2025Article
- Patient health engagement as a predictor of symptom outcomes in patients receiving chemotherapy.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Activation and Preparedness for Survivorship Care Among Survivors of Oral and Oropharyngeal Cancers.Head & neck · 2025Article
- A Web-Based Training Intervention for Primary Care Providers on Preparing Patients for Cancer Treatment Decisions and Conversations About Clinical Trials: Evaluation of a Pilot Study Using Mixed Methods and Follow-Up.JMIR medical education · 2025Article
- Wellbeing status and priority concerns of patients with advanced renal cell carcinoma: results of the EONS PROMs project international online survey.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Article
- At-home Breast Oncology care Delivered with EHealth solutions (ABODE) study protocol: a randomised controlled trial.BMJ open · 2025Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesWe assess how patient activation is associated with behaviors and experiences of people with cancer, including: understanding risks; making treatment decisions; communicating with providers; coping with symptoms; and adhering to regimens.
methodsThe study utilizes survey data from six surveys each including 500 cancer survivors. Multivariate analyses are presented.
resultsHigher activated patients are more than 9 times more likely to feel their treatment plans reflect their values, 4.5 times more likely to cope with side effects, and almost 3.3 times more likely to initiate a healthier diet after their diagnosis, than are less activated patients. Less activated patients are less likely understand their diagnosis, to follow treatment regimens, and to be satisfied with their care.
conclusionsThe findings show that all along the care continuum, patient activation is associated with differences in experiences. PRACTICE IMPLICATIONS: The findings point to the value of assessing patients' activation levels at the beginning of their cancer experience.
Indexed as
Identifiers
28330715What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.