ArticleThe American journal of hospice & palliative care2018
Patient Self-Defined Goals: Essentials of Person-Centered Care for Serious Illness.
Article in The American journal of hospice & palliative care, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT01746446 (LifeCourse), which is not on this map. Cited by 23 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
LifeCourse: A Supportive Care Approach for Patients Late in Life
Who cites it
23 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Timely short-term specialized palliative care service intervention for older people with frailty and their family carers in primary care: Development and modelling of the frailty+ intervention using theory of change.Palliative medicine · 2021Pooled it
- Pooled it
- Exploring documentation in Person-centred care: A content analysis of care plans.International journal of older people nursing · 2022Trial
- Assessing the Implementation and Effectiveness of the Electronic Patient-Reported Outcome Tool for Older Adults With Complex Care Needs: Mixed Methods Study.Journal of medical Internet research · 2021Trial
- Conceptual Development Informing the Kidney Failure Patient Life Goals Survey.Kidney medicine · 2026Article
- Time to Talk Money? Intensive Care Unit Clinicians' Perspectives on Addressing Patients' Financial Hardship.American journal of critical care : an official publication, American Association of Critical-Care Nurses · 2025Article
- Personal legacy and treatment choices for serious illness: a scoping review.BMJ supportive & palliative care · 2024Article
- A Patient-Centered Conceptual Model of AYA Cancer Survivorship Care Informed by a Qualitative Interview Study.Cancers · 2024Article
- Using value-focused thinking to elicit oncologic inpatients' life and treatment objectives: a qualitative interview study.The Journal of international medical research · 2024Article
- Psychiatric Goals of Care at the End of Life: A Qualitative Analysis of Medical Records at a Geriatric Psychiatric Outpatient Clinic.Journal of aging research · 2024Article
- Hope and illness expectations: A cross-sectional study in patients with advanced cancer.Palliative medicine · 2024Article
- Health Professionals' Motivational Strategies to Enhance Adherence in the Rehabilitation of People with Lower Limb Fractures: Scoping Review.International journal of environmental research and public health · 2023Article
- Physicians' narratives of communication with patients and their relatives in different phases of the palliative pathway.BMJ open · 2023Article
- Goals and goal perceptions in patients with advanced stage lung cancer: a mixed methods study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Article
- Exploring readiness for implementing goal-oriented care in primary care using normalization process theory.Primary health care research & development · 2023Article
- What are the personal last wishes of people with a life-limiting illness? Findings from a longitudinal observational study in specialist palliative care.BMC palliative care · 2022Observational
- Goal-oriented care for patients with chronic conditions or multimorbidity in primary care: A scoping review and concept analysis.PloS one · 2022Article
- The association between perceived patient-centered care and symptoms experienced by patients undergoing anti-cancer treatment.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
- The biopsychosocial-digital continuum of foot orthosis practice and research: the VALUATOR model.Journal of foot and ankle research · 2021Article
- Are people most in need utilising health facilities in post-conflict settings? A cross-sectional study from South Kivu, eastern DR Congo.Global health action · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
This research, a descriptive qualitative analysis of self-defined serious illness goals, expands the knowledge of what goals are important beyond the physical-making existing disease-specific guidelines more holistic. Integration of goals of care discussions and documentation is standard for quality palliative care but not consistently executed into general and specialty practice. Over 14 months, lay health-care workers (care guides) provided monthly supportive visits for 160 patients with advanced heart failure, cancer, and dementia expected to die in 2 to 3 years. Care guides explored what was most important to patients and documented their self-defined goals on a medical record flow sheet. Using definitions of an expanded set of whole-person domains adapted from the National Consensus Project (NCP) Clinical Practice Guidelines for Quality Palliative Care, 999 goals and their associated plans were deductively coded and examined. Four themes were identified-medical, nonmedical, multiple, and global. Forty percent of goals were coded into the medical domain; 40% were coded to nonmedical domains-social (9%), ethical (7%), family (6%), financial/legal (5%), psychological (5%), housing (3%), legacy/bereavement (3%), spiritual (1%), and end-of-life care (1%). Sixteen percent of the goals were complex and reflected a mix of medical and nonmedical domains, "multiple" goals. The remaining goals (4%) were too global to attribute to an NCP domain. Self-defined serious illness goals express experiences beyond physical health and extend into all aspects of whole person. It is feasible to elicit and record serious illness goals. This approach to goals can support meaningful person-centered care, decision-making, and planning that accords with individual preferences of late life.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.