ArticleJournal of bioethical inquiry2017
Ethics and Epistemology in Big Data Research.
Article in Journal of bioethical inquiry, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
20 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Opportunities for a national genomic data governance framework in Australia: a systematic review.BMC medical ethics · 2025Pooled it
- The WHO Pandemic Agreement's Missing Epistemic Architectures: Infodemics and Antimicrobial Resistance as Examples.Asian bioethics review · 2025Article
- Benefits and risks of health data reuse for healthcare providers: stakeholder perspectives from a qualitative interview study.BMC health services research · 2025Article
- Public Involvement and Engagement in Big Data Research: Scoping Review.Journal of participatory medicine · 2024Article
- Association of adherence to individual components of Society of Thoracic Surgeons cardiac surgery antibiotic guidelines and postoperative infections.The Journal of thoracic and cardiovascular surgery · 2024Observational
- Developing an ethical framework-guided instrument for assessing bias in EHR-based Big Data studies: a research protocol.BMJ open · 2023Article
- Ethical issues in big data: A qualitative study comparing responses in the health and higher education sectors.PloS one · 2023Article
- Ethical Issues in Social Science Research Employing Big Data.Science and engineering ethics · 2022Article
- Sharing Government Health Data With the Private Sector: Community Attitudes Survey.Journal of medical Internet research · 2021Article
- Article
- Challenges for ethics committees in biomedical research governance: illustrations from China and Australia.Journal of medical ethics and history of medicine · 2021Article
- Ethical Considerations of Using Machine Learning for Decision Support in Occupational Health: An Example Involving Periodic Workers' Health Assessments.Journal of occupational rehabilitation · 2020Review
- A call for an ethical framework when using social media data for artificial intelligence applications in public health research.Canada communicable disease report = Releve des maladies transmissibles au Canada · 2020Article
- Informed consent within a learning health system: A scoping review.Learning health systems · 2020Article
- The Population Health OutcomEs aNd Information EXchange (PHOENIX) Program - A Transformative Approach to Reduce the Burden of Chronic Disease.Online journal of public health informatics · 2020Article
- The quality of research with real-world evidence.Colombia medica (Cali, Colombia) · 2019Article
- Taking patient involvement seriously: a critical ethical analysis of participatory approaches in data-intensive medical research.BMC medical informatics and decision making · 2019Article
- Guidelines and recommendations for ensuring Good Epidemiological Practice (GEP): a guideline developed by the German Society for Epidemiology.European journal of epidemiology · 2019Article
- Evidence-based medicine and big genomic data.Human molecular genetics · 2018Review
- Ethics and Epistemology of Big Data.Journal of bioethical inquiry · 2017Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
Abstract
Biomedical innovation and translation are increasingly emphasizing research using "big data." The hope is that big data methods will both speed up research and make its results more applicable to "real-world" patients and health services. While big data research has been embraced by scientists, politicians, industry, and the public, numerous ethical, organizational, and technical/methodological concerns have also been raised. With respect to technical and methodological concerns, there is a view that these will be resolved through sophisticated information technologies, predictive algorithms, and data analysis techniques. While such advances will likely go some way towards resolving technical and methodological issues, we believe that the epistemological issues raised by big data research have important ethical implications and raise questions about the very possibility of big data research achieving its goals.
Indexed as
Identifiers
28321561What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.