Evidence map›Paper›PMID 28320217›Full record

ArticleDisability and rehabilitation2018

Patient-centered mobility outcome preferences according to individuals with stroke and caregivers: a qualitative analysis.

Shilpa Krishnan, Monique R Pappadis, Susan C Weller, Steve R Fisher, Catherine C Hay, Timothy A Reistetter

Registry-linked trialAbstract read
In one paragraph

Article in Disability and rehabilitation, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06827093 (Augmented Dyadic Interventions to Boost Quality of Life Among Stroke Survivors and Care Partners in Pakistan.), which is not on this map. Cited by 15 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
15citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06827093 nacompletednot on this mapstarted 2021, after this paper: background citation

Augmented Dyadic Interventions to Boost Quality of Life Among Stroke Survivors and Care Partners in Pakistan.

TypeinterventionalSponsorZhengzhou UniversityRan2021 to 2024Enrolled392ConditionsChronic StrokeArmsSkill Building Dyadic Intervention
3 · Its place in the literature

Who cites it

15 citing papers in PubMed, 1 synthesis or guideline pooled it.

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  13. The Experience of a Neurocritical Care Admission and Discharge for Patients and Their Families: A Qualitative Analysis.The Journal of neuroscience nursing : journal of the American Association of Neuroscience Nurses · 2020
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Shilpa Krishnana Department of Occupational Therapy , University of Texas Medical Branch , Galveston , TX , USA.ORCID 0000-0002-9419-0495
Monique R Pappadisb Division of Rehabilitation Sciences , University of Texas Medical Branch , Galveston , TX , USA.ORCID 0000-0003-4742-4380
Susan C Wellerc Preventive Medicine and Community Health , University of Texas Medical Branch , Galveston , TX , USA.
Steve R Fisherd Department of Physical Therapy , University of Texas Medical Branch , Galveston , TX , USA.
Catherine C Hayb Division of Rehabilitation Sciences , University of Texas Medical Branch , Galveston , TX , USA.
Timothy A Reistettera Department of Occupational Therapy , University of Texas Medical Branch , Galveston , TX , USA.

Funding

UTMB Clinical and Translational Science AwardUL1TR001439 · NCATS · UNIVERSITY OF TEXAS MED BR GALVESTON · PI URBAN, RANDALL J · 2015 to 2024
$40.0M
UTMB OAIC Research Education Component (REC)P30AG024832 · NIA · UNIVERSITY OF TEXAS MEDICAL BR GALVESTON · PI JAMES S. GOODWIN, MD, MELISSA M. MORROW · 2005 to 2026
$26.7M
UTMB CLINICAL AND TRANSLATIONAL SCIENCE AWARD: NASA BED REST STUDIESUL1RR029876 · NCRR · UNIVERSITY OF TEXAS MED BR GALVESTON · PI BRASIER, ALLAN R. · 2009 to 2011
$17.7M
Patient Centered Outcomes Research in the ElderlyR24HS022134 · AHRQ · UNIVERSITY OF TEXAS MED BR GALVESTON · PI GOODWIN, MD, JAMES S. · 2013 to 2017
$4.8M
Development and Evaluation of Rehabilitation Service AreasR01HS024711 · AHRQ · UNIVERSITY OF TEXAS MED BR GALVESTON · PI REISTETTER, TIMOTHY · 2016 to 2019
$1.2M
Regional Variability in Inpatient Rehabilitation among Medicare BeneficiariesK01HD068513 · NICHD · UNIVERSITY OF TEXAS MED BR GALVESTON · PI REISTETTER, TIMOTHY · 2011 to 2014
$438k
AHRQ HHS R01 HS024711AHRQ HHS R24 HS022134NCATS NIH HHS UL1 TR001439NCRR NIH HHS UL1 RR029876NIA NIH HHS P30 AG024832NICHD NIH HHS K01 HD068513
6 · The paper itself

Abstract

purposeTo explore the mobility-related preferences among stroke survivors and caregivers following post-acute rehabilitation at inpatient or skilled nursing facilities.

methodsIn this cross-sectional study; semi-structured, qualitative interviews of stroke survivors (n = 24) and informal caregivers (n = 15) were conducted. The participants were recruited from the community.

resultsComparative content analysis was used to identify themes by two independent coders. The survivors (68 years) and caregivers (58 years) mentioned mobility-related consequences including inability to walk, balance, drive, and transfer; and increased falls. The survivors (63%) and caregivers (73%) also mentioned the use of assistive devices. The common rehabilitation activities included: walking (62%); followed by standing and mobility; strength and balance; and wheelchair skills. Some stroke survivors were dissatisfied as their rehabilitation was not patient-centered. Frequently mentioned outcome preferences by survivors were ability to walk (88%), move, and balance. They also wanted to acquire assistive devices to move independently. Caregivers were concerned with the survivor's safety and wanted them to drive (53%), prevent falls, have home accommodations, and transfer independently. Caregivers (40%) also expressed the importance of receiving realistic information.

conclusionsThis study suggests a need to consider the stroke survivors' and caregivers' mobility outcome preferences to improve the patient-centered rehabilitation care. Implications for Rehabilitation Stroke survivors and caregivers tend to differ in their outcome preferences. Caregivers expressed concern for transfers, driving, fall prevention, home modifications, and wished for realistic information. Incorporating stroke survivors and their families' perspectives during rehabilitation may enhance patient-centered outcomes.

Indexed as

Mobility LimitationStrokeStroke RehabilitationAccidental FallsAgedAttitude to HealthCaregiversCross-Sectional StudiesFemaleHumansMaleMiddle AgedNeeds AssessmentPatient-Centered CarePatient Outcome AssessmentPatient PreferencecaregiversMobilitypatient-centeredqualitative researchrehabilitationstroke

Identifiers

PMID28320217
PMCPMC5608617

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.