ArticlePloS one2017
Recommendations for patient engagement in guideline development panels: A qualitative focus group study of guideline-naïve patients.
Article in PloS one, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 52 papers, 6 of them syntheses that pooled it.
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Who cites it
52 citing papers in PubMed, 6 syntheses or guidelines pooled it.
- Quality appraisal of clinical practice guidelines for fertility preservation in patients with breast cancer: a systematic review using AGREE II and AGREE-REX.Frontiers in medicine · 2026Pooled it
- Emergency and sequalae management of traumatic dental injuries: a systematic survey of clinical practice guidelines.BMC oral health · 2023Pooled it
- Consumers' and health providers' views and perceptions of partnering to improve health services design, delivery and evaluation: a co-produced qualitative evidence synthesis.The Cochrane database of systematic reviews · 2023Pooled it
- Clinical Practice Guidelines on the Diagnosis and Management of Polycystic Ovary Syndrome: A Systematic Review and Quality Assessment Study.The Journal of clinical endocrinology and metabolism · 2021Pooled it
- Dental caries prevention in children and adolescents: a systematic quality assessment of clinical practice guidelines.Clinical oral investigations · 2018Pooled it
- Patient and public engagement in priority setting: A systematic rapid review of the literature.PloS one · 2018Pooled it
- Impact of patient involvement on clinical practice guideline development: a parallel group study.Implementation science : IS · 2018Trial
- Article
- Barriers and Facilitators to Interest-Holder Engagement in Health Guideline Development: A Qualitative Evidence Synthesis.Campbell systematic reviews · 2026Review
- Patient and Public Involvement Reporting Consistency: Analysis of 24 Clinical Practice Guidelines From 4 Countries.Clinical and public health guidelines · 2026Article
- Participatory development of patient-targeted guideline material in palliative care: A qualitative evaluation.Palliative care and social practice · 2026Article
- Community engagement in health guidelines and other normative products: a methodological review.Bulletin of the World Health Organization · 2025Review
- TransitionED: A protocol for Co-designing and implementing Canadian practice guidelines for transitions for youth with eating disorders.European eating disorders review : the journal of the Eating Disorders Association · 2025Article
- Importance, facilitators and barriers for finnish general practitioner involvement in clinical practice guideline panels: a survey.BMC primary care · 2025Article
- 'We are the engine': a focus group study on clinical practice guideline development with European patient advocates for rare congenital malformations and/or intellectual disability.Orphanet journal of rare diseases · 2025Article
- Patient involvement in the development of clinical practice guidelines in Germany-A meta-research study.Clinical and public health guidelines · 2025Article
- Unravelling Education Needs for Clinical Practice Guideline Development: A Survey Performed in the Netherlands.Journal of evaluation in clinical practice · 2025Article
- Rationalizing the Influence of Co-Design on Distress, Clinical Decision-Making and Disease Self-Management of Cancer Patients-as-Partners: A Quasi-Experimental Study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Evaluating patient participation in value-based healthcare: Current state and lessons learned.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Article
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
backgroundPatient and consumer engagement in clinical practice guideline development is internationally advocated, but limited research explores mechanisms for successful engagement.
objectiveTo investigate the perspectives of potential patient/consumer guideline representatives on topics pertaining to engagement including guideline development group composition and barriers to and facilitators of engagement. SETTING AND
participantsParticipants were guideline-naïve volunteers for programs designed to link community members to academic research with diverse ages, gender, race, and degrees of experience interacting with health care professionals.
methodsThree focus groups and one key informant interview were conducted and analyzed using a qualitative descriptive approach.
resultsParticipants recommended small, diverse guideline development groups engaging multiple patient/consumer stakeholders with no prior relationships with each other or professional panel members. No consensus was achieved on the ideal balance of patient/consumer and professional stakeholders. Pre-meeting reading/training and an identified contact person were described as keys to successful early engagement; skilled facilitators, understandable speech and language, and established mechanisms for soliciting patient opinions were suggested to enhance engagement at meetings.
conclusionsMost suggestions for effective patient/consumer engagement in guidelines require forethought and planning but little additional expense, making these strategies easily accessible to guideline developers desiring to achieve more meaningful patient and consumer engagement.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.