ArticleInflammatory bowel diseases2017
Communication Between Physicians and Patients with Ulcerative Colitis: Reflections and Insights from a Qualitative Study of In-Office Patient-Physician Visits.
Article in Inflammatory bowel diseases, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 1 of them a synthesis that pooled it.
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Who cites it
30 citing papers in PubMed, 1 synthesis or guideline pooled it, 42 citations in OpenAlex.
- Pooled it
- Optimizing 5-Aminosalicylic Acid Maintenance Treatment in Ulcerative Colitis from the Patient and Physician Perspective: A Cross-sectional Multicenter Study.Crohn's & colitis 360 · 2025Article
- Patient and Health Care Professional Perspectives on the Burden and Daily Life Impact of Ulcerative Colitis and Crohn's Disease: Results from the Japanese CONFIDE Study.Advances in therapy · 2025Article
- Understanding diagnostic delays and health outcomes for inflammatory bowel disease: a mixed-methods study of patients' perspectives.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- Real-World Treatment Outcomes Associated With Early Versus Delayed Vedolizumab Initiation in Patients With Ulcerative Colitis.Crohn's & colitis 360 · 2024Article
- The Communicating Needs and Features of IBD Experiences (CONFIDE) Study: US and European Patient and Health Care Professional Perceptions of the Experience and Impact of Symptoms of Moderate-to-Severe Ulcerative Colitis.Inflammatory bowel diseases · 2024Article
- IBD-PODCAST Spain: A Close Look at Current Daily Clinical Practice in IBD Management.Digestive diseases and sciences · 2024Article
- Profiles of Web-based Portal Users with Inflammatory Bowel Disease.Inflammatory bowel diseases · 2024Article
- Bowel Urgency in Patients with Ulcerative Colitis and Crohn's Disease: A Cross-Sectional Real-World Survey in Japan.Advances in therapy · 2024Article
- Concordance and Discordance Between Patient-reported Remission, Patient-reported Outcomes, and Physician Global Assessment.Inflammatory bowel diseases · 2023Article
- Health Communication Research Informs Inflammatory Bowel Disease Practice and Research: A Narrative Review.Crohn's & colitis 360 · 2023Article
- Medication Formulation Preference of Mild and Moderate Ulcerative Colitis Patients: a European Survey.Inflammatory intestinal diseases · 2023Article
- Identifying and understanding disease burden in patients with inflammatory bowel disease.BMJ open gastroenterology · 2022Article
- Notable gaps between patients' and physicians' perspectives on communication and disease management in Japan: multifacetedTherapeutic advances in gastroenterology · 2022Article
- Ulcerative Colitis Narrative Global Survey Findings: The Impact of Living With Ulcerative Colitis-Patients' and Physicians' View.Inflammatory bowel diseases · 2021Article
- Ulcerative Colitis Narrative findings: Australian survey data comparing patient and physician disease management views.JGH open : an open access journal of gastroenterology and hepatology · 2021Article
- Physician-patient communication affects patient satisfaction in treatment decision-making: a structural equation modelling analysis of a web-based survey in patients with ulcerative colitis.Journal of gastroenterology · 2021Article
- Approach to the Management of Recently Diagnosed Inflammatory Bowel Disease Patients: A User's Guide for Adult and Pediatric Gastroenterologists.Gastroenterology · 2021Review
- Reach and Power of Physician-Initiated Tweets in a Twitter Inflammatory Bowel Disease Community.Crohn's & colitis 360 · 2021Article
- Ulcerative Colitis Narrative Global Survey Findings: Communication Gaps and Agreements Between Patients and Physicians.Inflammatory bowel diseases · 2021Article
Corrections and comments
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Authors and funding
5 authors at 4 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundWe analyzed in-office communication between patients with ulcerative colitis (UC) and their gastroenterologists.
methodsParticipating gastroenterologists (United States N = 15; Europe N = 8) identified eligible patients with scheduled clinic visits. Patients (United States N = 40; Europe N = 28; ≥18 yr old; physician-defined moderately-to-severely active ulcerative colitis for approximately ≥1 yr; ≥1 flare in preceding year; prior or current therapy with 5-aminosalicylates and/or corticosteroids) consented to have their visit recorded. Follow-up interviews were conducted separately with gastroenterologists and patients. Transcripts were analyzed using sociolinguistic methods to explore quality of life (QoL) impacts, treatment goals, and attitudes to therapies.
resultsIn the European and U.S. research, the trend was for patients not to discuss ulcerative colitis QoL impacts during their visits. In the U.S. research, complete patient-physician alignment on QoL impacts (patient and physician stating the same impacts) was seen in 40% of cases. Variation in treatment goals was seen between gastroenterologists and patients: 3% of U.S. patients described absence of inflammation as a treatment goal versus 25% of gastroenterologists. This goal was not always conveyed to the patient during visits. Consistent with guidelines, physicians generally framed biologic therapy as suitable for patients refractory to conventional therapies. However, although putative efficacy offered by biologic therapy is generally aligned with patients' stated treatment goals, many considered biologic therapy as more appropriate for more severe disease than theirs.
conclusionsAlignment between patients and physicians on ulcerative colitis QoL impact, treatment goals, and requirement of advanced therapies is poor. New tools are needed to cover this gap.
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Registered trials
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