ArticlePsycho-oncology2017
Levels of unmet needs and distress amongst adolescents and young adults (AYAs) impacted by familial cancer.
Article in Psycho-oncology, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
28 citing papers in PubMed, 1 synthesis or guideline pooled it, 62 citations in OpenAlex.
- A Systematic Review of Self-Report Instruments for the Measurement of Anxiety in Hospitalized Children with Cancer.International journal of environmental research and public health · 2021Pooled it
- Pain Predicts Next-Day Fatigue in Adolescents and Young Adults Receiving Maintenance Treatment for Acute Lymphoblastic Leukemia.Journal of adolescent and young adult oncology · 2026Article
- Correlates and trajectories of family functioning in parents with cancer and their adolescent and young adult children.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Supporting siblings of children with chronic medical conditions: a systematic review.Journal of pediatric psychology · 2026Article
- Exploring the use of a youth specific screening tool in hematological cancer care: perspectives from young adult patients and healthcare professionals.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- "They had to watch": How parents perceive the suffering of siblings of children with cancer.Palliative & supportive care · 2025Article
- Family adjustment and resilience after a parental cancer diagnosis.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- "Queer people are excellent caregivers, but we're stretched so very thin": Psychosocial wellbeing and impacts of caregiving among LGBTQI cancer carers.BMC cancer · 2024Article
- Cancer patients as parents: implementation of a cross sector service for families with adolescent and young adult children.BMC health services research · 2023Article
- Psychiatric Disorder Incidence Among Adolescents and Young Adults Aged 15-39 With Cancer: Population-Based Cohort.JNCI cancer spectrum · 2022Article
- What helps distressed Australian adolescents impacted by cancer? Mechanisms of improvement of the PEER program.Health & social care in the community · 2022Article
- Boys Don't Cry: Examining Sex Disparities in Behavioral Oncology Referral Rates for AYA Cancer Patients.Frontiers in psychology · 2022Article
- Unfulfilled psychosocial needs of the adolescent siblings of patients with cancer and the identification of the related factors.Frontiers in psychology · 2022Article
- Development and Evaluation of theCancers · 2021Article
- What Are the Psycho-Social and Information Needs of Adolescents and Young Adults Cancer Care Consumers with Intellectual Disability? A Systematic Review of Evidence with Recommendations for Future Research and Practice.Children (Basel, Switzerland) · 2021Review
- Screening for distress and needs: Findings from a multinational validation of the Adolescent and Young Adult Psycho-Oncology Screening Tool with newly diagnosed patients.Psycho-oncology · 2021Article
- Adolescent siblings of children with cancer: a qualitative study from a salutogenic health promotion perspective.International journal of qualitative studies on health and well-being · 2020Article
- Initial validation of a needs instrument for young people bereaved by familial cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2020Article
- What young people need when a family member dies of cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2020Article
- Pediatric resident knowledge, experience, comfort, and perceived competency in providing sibling psychosocial support.International journal of medical education · 2020Article
Corrections and comments
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Authors and funding
5 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo describe levels of, and relationships between, distress and psychosocial unmet needs in adolescents and young adults (AYAs) with a family member with cancer.
methodsAdolescents and young adults (12-24 years old) with a living sibling or parent with cancer participated. Participants completed demographics, the Kessler 10 (K10) distress scale and the Sibling or Offspring Cancer Needs Instruments. Descriptive statistics were obtained for all measures, item-level frequencies were examined to identify common unmet needs, and relationships between distress and unmet needs were explored.
resultsAverage sibling (N = 106) and offspring (N = 256) distress levels were in the high range (K10total = 22-30), with 29.6% and 31.6% in the very high range (K10total = 31-50), respectively. Siblings had mean = 19.7 unmet needs (range 0-45), 66% had ≥10 unmet needs, and 44% of the 45 needs were unmet on average. Offspring had mean = 22.4 unmet needs (range 0-47), 77% had ≥10 unmet needs, and 48% of the 47 needs were unmet on average. Strong positive correlations were found between K10 distress and the number of sibling/offspring unmet needs (r = 0.599 and r = 0.522, respectively, P = .00).
conclusionsAustralian AYA siblings and offspring impacted by familial cancer experience high levels and numbers of unmet needs and substantial distress. Strong associations were found between increased distress and more unmet needs. Distress levels were comparable to AYAs seeking treatment for mental health issues. Insights into the type and number of needs experienced by AYA siblings and offspring will facilitate development and delivery of targeted, age-appropriate interventions, and resources for these vulnerable and underserved young people.
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