ArticleHealth expectations : an international journal of public participation in health care and health policy2017
Understanding advance care planning within the South Asian community.
Article in Health expectations : an international journal of public participation in health care and health policy, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers, 3 of them syntheses that pooled it.
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Who cites it
25 citing papers in PubMed, 3 syntheses or guidelines pooled it, 42 citations in OpenAlex.
- Key factors influencing post-diagnostic support and care planning for people with dementia from South Asian backgrounds: a systematic review of qualitative studies.BMC geriatrics · 2026Pooled it
- The Influence of Religiosity and Spirituality on Health in Canada: A Systematic Literature Review.Journal of religion and health · 2022Pooled it
- Perspectives of elders and their adult children of Black and minority ethnic heritage on end-of-life conversations: A meta-ethnography.Palliative medicine · 2020Pooled it
- Article
- Development and validation of a culturally relevant tool for advance care planning in India.BMC medical education · 2026Article
- Barriers and facilitators to advance care planning implementation for patients with neurodegenerative diseases among Indian physicians: a mixed-methods analysis.BMC health services research · 2026Article
- Advance care planning among stroke patients: A scoping review.International journal of nursing sciences · 2025Review
- Barriers and preferences in advance care planning: a mixed-methods study of end-stage kidney disease patients and caregivers in India.BMC nephrology · 2025Article
- Article
- Co-production in practice: A qualitative study of the development of advance care planning workshops for South Asian elders.Palliative medicine · 2025Article
- Advance care planning readiness among community-dwelling older adults and the influencing factors: a scoping review.BMC palliative care · 2024Article
- A cross-sectional study on advance care planning documentation attitudes during national advance care planning week in a South-East Asian country.BMC palliative care · 2024Article
- Readiness for advance care planning and related factors in the general population: a cross sectional study in Iran.BMC palliative care · 2024Article
- Psychometric properties of Persian version of advance care planning questionnaire among older adults in Iran.BMC geriatrics · 2024Article
- Towards a better understanding between non-Muslim primary care clinicians and Muslim patients: A literature review intended to reduce health care inequities in Muslim patients.Health policy OPEN · 2023Review
- Transitions from pediatric to adult rheumatology care for juvenile idiopathic arthritis: a patient led qualitative study.BMC rheumatology · 2022Article
- Knowledge, attitude and practice of community-dwelling adults regarding advance care planning in Malaysia: a cross-sectional study.BMJ open · 2022Article
- How Acculturation Influences Attitudes about Advance Care Planning and End-of-Life Care among Chinese Living in Taiwan, Hong Kong, Singapore, and Australia.Healthcare (Basel, Switzerland) · 2021Article
- English and Spanish-speaking vulnerable older adults report many barriers to advance care planning.Journal of the American Geriatrics Society · 2021Article
- Muslim perspectives on advance care planning: a model for community engagement.Palliative care and social practice · 2021Article
Corrections and comments
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Authors and funding
9 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAdvance care planning (ACP) is a process of reflection on and communication of a person's future health-care preferences. Evidence suggests visible minorities engage less in ACP. The South Asian ethnic group is the largest visible minority group in Canada, and information is needed to understand how ACP is perceived and how best to approach ACP within this diverse community.
objectiveTo explore perspectives of South Asian community members towards ACP.
designPeer-to-peer inquiry. South Asian community members who graduated from the Patient and Community Engagement Research programme (PaCER) at the University of Calgary utilized the PaCER method (SET, COLLECT and REFLECT) to conduct a focus group, family interviews and a community forum. SETTING AND
participantsFifty-seven community-dwelling men and women (22-86 years) who self-identified with the South Asian community in Calgary, Alberta, Canada.
resultsThe concept of ACP was mostly foreign to this community and was often associated with other end-of-life issues such as organ donation and estate planning. Cultural aspects (e.g. trust in shared family decision making and taboos related to discussing death), religious beliefs (e.g. fatalism) and immigration challenges (e.g. essential priorities) emerged as barriers to participation in ACP. However, participants were eager to learn about ACP and recommended several engagement strategies (e.g. disseminate information through religious institutions and community centres, include families in ACP discussions, encourage family physicians to initiate discussions and translate materials).
conclusionsUse of a patient engagement research model proved highly successful in understanding South Asian community members' participation in ACP.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.